Help me beat Trigeminal Neuralgia The Suicide Pain
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Hi my name is Xavier and I have been suffering for over 7 excruciatingly painful and incapacitating pain from a rare brain disease being the most painful disease in the world known as Trigeminal Neuralgia also known as the suicide pain. Roughly 23-27% of my fellow Trigeminal Neuralgia sufferers take their own lives due to being unable to cope with the level of pain brought on by the disease. There are multiple ways to get the disease, I sustained extremely damaging strains to my entire neck, spine, back, tissues, and muscles in those areas of my body when another driver caused a very back wreck that almost ended my life. The first person from 911 that interacted with me took one look at my car and at me and immediately remarked that had I not had my seat belt on that I would of died instantly, my mother always taught me to always wear my seatbelt and I always do. As a direct result of that wreck I developed the brain disease. I have had 6 brain surgeries to try and cure my pain so that I can get back to living a normal life, but nothing has worked at all. None of the treatments and surgeries have done anything at all to reduce or eliminate my pain 100%.
There are two types of Trigeminal Neuralgia, type 1 and type 2, I unfortunately have type 1. Type 1 is where the pain is present 24/7 all day long. I am on different medications to try and help manage my pain levels which is a temporary solution to my long term problem. My most recent visit with my radio oncologist which was follow up appointment after my most recent brain surgery of the radiation variety known as Cyberknife on 08-11-22. That surgery as aforementioned previously with the other surgeries did not work. He very bluntly let me know that he’s never had a TN patient that he wasn’t able to help in some capacity and that I was his most difficult patient he’s ever had and he’s extremely frustrated and regretful that he wasn’t able to help me at all. He also let me know that essentially that the radiation brain surgery with him was last resort and hope of getting cured partially or in full. Meaning that in my state I have literally went through every available avenue of treatment possible here and also every surgery and procedure available from a medical standpoint that all of my doctors could do.
At this point I am working with the University of Texas San Antonio Physicians Trigeminal Neuralgia Research Department on the next number of experimental new surgeries and treatments as well as different medical procedures not available in my state. Being that I live in a state different from Texas, the amount of funds I would need to cover travel, medical, cost of living, previous bills from previous surgeries and procedures, and possible unforeseen costs would be a number not feasibly predictable at this time. The goal is to work with the University of Texas on doing as many surgeries and procedures that’s medically necessary to find a permanent or temporary cure.
With the temporary cures there’s an estimate on each treatment to where the TN can restart on its own. I am working on getting onto social security disability as well as social security income benefits, but that process is very lengthy. I will have a YouTube page that everyone can view routinely to get real time updates on what’s going on with my progress. I am in desperate need of your help, please donate whatever you can and be sure to share this with your friends and family and post this on your social media pages to help raise awareness. Thank you all from the bottom of my heart. I’m eternally grateful.
Here's the University of Texas' Trigeminal Neuralgia Research Center:
This is of the kind of unimaginable pain I'm in daily & have been for the past 7 years:
First episode of Trigeminal Neuralgia AKA "The Suicide Pain". NSFW, listen with headphones. Do not listen to around children. It's extremely hard to listen to:
You can keep track of my progress on my new YouTube channel for frequent updates:
Please share and donate to my GoFundMe to help me get my 7th brain surgery if you can:
Organizer
Xavier Anthony
Organizer
Louisville, KY