Custody of Special Needs Child

I feel like I am mourning my child. On Mother’s Day. For the past two years, I have been in a very difficult custody “fight.” It was not even a fight. It was wrong versus right. And a walk away while I decided to stick by my son unconditionally. The reality is that I have been the sole active parent to a special needs child whose medical condition has the potential of causing death. Death. While another actively chose to create roadblocks for this child to receive medical care. Denying medical issues and continued avoidance to paying costs. Refusing participation in the child’s life. The typical. Except that this child can die as a result of a neglectful caregiver. The parent's admission in court of not knowing anything about the child, their medical care, not anything. The parent stating lifesaving care was "unnecessary" in court. And ultimately, messages from his wife stating that the reason for seeking custody was to "control" me, read in court. All of this presented against an individual willing to relinquish possession in exchange for not having to pay costs. But not willing to relinquish control.

Yet, the court laid their decision. The court openly recognized the great potential of death of the child without proper care. They openly recognized the child’s rare medical conditions including those that can result in death overnights. They openly recognized the other parent’s multiple attempts to deny the child medical care. They openly recognized the other parent’s creation of roadblocks for his “own DNA” that cause harm to the children. The court recognized to the party’s extreme self-victimization and “helpless syndrome” that requires supervision on itself by third parties and no self-reliance with it being the “worse case” the court has seen. They openly admitted to everything I have stated, argued, presented and more. On record. And yet, the State of Texas has ordered a special needs child who has potential to die over night to the standard minimum possession for a non-medical child in Texas contrary to the child’s ultimate best interest. His life.

Jace has ATRX. A rare syndrome that causes a host of medical issues. I’ve carried his almost lifeless body multiple times, I have performed lifesaving maneuvers, I have revolved my entire life around improving his medical care. I have paused my entire life and gone to the ends of earth seeking answers to his rare conditions. All while privately battling a person whose retaliatory actions point in every direction hoping something sticks.

I know I can no longer afford to fight for my child and need help. I have spent tens of thousands of dollars in medical costs and lawyer fees for two years. And I can no longer afford to continue to fight for Jace. But I am not willing to stop until every option is exhausted and he is safe. I have protected him all these years, and I now feel like I've let him down. The State of Texas has let him down. I have rescued thousands of lives and my own son's life is now at stake. I am begging to help me try to save my son. It is incredibly dangerous giving an individual who denies medical issues, care, and access to a special needs child and much less when his seizures are most active- at nights. While I never saw myself doing this, I now have to. I have to try to seek legal methods to get him same through a flawed family court system. Jace cannot be another child that faces the ultimate consequence for a flawed custody system!

Please help donate to continue fighting for Jace.