Cystic Fibrosis Cure for Ava

I am a first grade teacher. I had never heard of anyone with CF before our precious little Ava. After getting to know her 2 years ago, I have learned a great deal about Cystic Fibrosis and the daily fight she has for her life. Ava is one of the most amazing first graders I've ever met! At 8 years old, she is reading and completing 5th grade assignments. She is also one of the most selfless kids I have ever met. She ended up being nominated for our school's Spring Carnival Princess. Her mom and I were elated. However, Ava...on her own had her mindset that since she ended up winning the title of the queen in Kindergarten, she better give someone else a chance! Honestly, what 8 year-old little girl does this...I can't name one! She also, of course, was my little teacher helper due to her gifted mind and she went above and beyond to encourage other kids... begging to help. Like other girls her age, she loves unicorns and all that sparkles. Ava, her family, and I are currently working with CFF to come up with school donation boxes and a kit to share with schools worldwide. When asked what this little superstar would pick as her motto, she said, "A little change (as in money can be the magic (unicorns) for those with Cystic Fibrosis." There are more than 70,000 people that have CF worldwide and 30,000 alone in the US and yet the govt will not fund such a "small" amount. We plan to change this and so can you!!! Ava was diagnosed with cystic fibrosis at birth so this disease is second nature to her. Breathing has literally been a job since she was born. In her free time, you can find her: playing softball, playing with her little friend, singing, or looking for a new adventure. She tries not to let CF get in the way of those things, but oftentimes she is in the hospital for testing, treatments, and to fight off illnesses that you and I can shake on our own. Living with cystic fibrosis isn’t always easy. However, people like you are making a difference in the CF community and the medical field’s future. All the fundraising is put into great efforts of developing new and sufficient drugs for patients like her to have hope for more tomorrows. Seeing more and more people stand up and take part in supporting patients living with this disease gives her and those out there hope.   According to the Cystic Fibrosis Foundation: "Breakthrough treatments have added years to the lives of people with cystic fibrosis. Today the median predicted survival age is close to 40. This is a dramatic improvement from the 1950s when a child with CF rarely lived long enough to attend elementary school. While there has been significant progress in treating this disease, there is still no cure and too many lives are cut far too short." How do you look at her with so many dreams, aspirations, and talents and tell her that she has a limited time in this world, bc there's just not enough research at this time to help her!!! This little girl deserves a cure and a fighting chance to live out her life to the absolute fullest. With her truly gifted mind and loving heart, I know that she will do great things and make the world a better place. There is so much bad out there in this world and when there is good we need to encourage, support and motivate them to do what God put us here to do.... https://youtu.be/FMAOEOmLoUE  This is what we showed my class to help them understand what it's like on a daily basis for Ava! BABTOP (BE A BLESSING TO OTHER PEOPLE)