Destiny's cloves & Spina bifida

Meet Destiny she is my grand-daughter and the heart and joy of so many people.  She is also a very special one of a kind girl,she is only one of three individuals in the United States that has Spina-Bifida and Cloves syndrome.  In June there will be a Cloves syndrome convention planned for in Boston.  This is a great and perfect convention for Destiny to attend, not only would it help her, but I also believe it would help the cloves Syndrome society since Destiny is one of the few with both....not only does our sweet Destiny have Spina Bifida, and Cloves she also has Encepalitis and clubbed feet. With all that being said,  her family has many expenses pertaining  to her treatment And care. We have checked dates, room rates and  general travel expenses for car, gas, food for the family to take and and remain with her while there.  This trip could benefit our Destiny and I believe it could also help the experts in the cloves syndrome community.  Please help make this a possible trip for this very giving girl and family.