Ladies Dance the Night Away for FA
Tax deductible
Fanconi Anemia (FA) is a rare, inherited, DNA repair disease that often leads to bone marrow failure, leukemia, physical abnormalities and exceptionally high rates of cancers.
Wesley was diagnosed with Fanconi Anemia at the age of one. He was born without ear canals, hypoplastic thumbs, one kidney and is in mild/moderate bone marrow failure. Currently he is doing well, his only treatments are yearly bone marrow biopsies to watch for signs of leukemia and chromosomal changes and blood draws to monitor his cell counts. Patients with FA typically develop aplastic anemia (a drop in all three blood cell lines) and will eventually need a bone marrow transplant which is very risky and toxic for an FA patient because of their fragile chromosomes. Even with a successful transplant, patients are at extremely high risks for cancers, such as head and neck cancer and they develop at a much earlier age than the general public. The current median lifespan for an FA patient is 33 years old.
Our family has been involved with the FA community for 12 years and know many children who have left this world before their time. Please come help us find a cure. It's close and because of the high instances of cancer in FA patients, researchers want to study why. Fanconi Anemia research helps the general population understand cancer. Today 19 Fanconi genes have been discovered. Two of them are the BRCA genes.
So ladies!!! Come dance the night away for FA and know your help is making a difference. Can't make it? Your donation is truly appreciated! Thank you so much! Can't go because you're a dude? Send the ladies in your life and have a quiet night relaxing on the couch. Or just donate and know you have our eternal gratitude ;)
Ladies, attending the dance? Donate at least $12 per adult and $5 per child, and let us know in the comments how many are attending. We'll have your name at the door. Limited space is available.
Tickets may be purchased at the door with cash only. $15 per adult and $5 per child.
All proceeds from the evening are tax deductible and will go to the Fanconi Anemia Research Fund (tax id 93-0995453)
Wesley was diagnosed with Fanconi Anemia at the age of one. He was born without ear canals, hypoplastic thumbs, one kidney and is in mild/moderate bone marrow failure. Currently he is doing well, his only treatments are yearly bone marrow biopsies to watch for signs of leukemia and chromosomal changes and blood draws to monitor his cell counts. Patients with FA typically develop aplastic anemia (a drop in all three blood cell lines) and will eventually need a bone marrow transplant which is very risky and toxic for an FA patient because of their fragile chromosomes. Even with a successful transplant, patients are at extremely high risks for cancers, such as head and neck cancer and they develop at a much earlier age than the general public. The current median lifespan for an FA patient is 33 years old.
Our family has been involved with the FA community for 12 years and know many children who have left this world before their time. Please come help us find a cure. It's close and because of the high instances of cancer in FA patients, researchers want to study why. Fanconi Anemia research helps the general population understand cancer. Today 19 Fanconi genes have been discovered. Two of them are the BRCA genes.
So ladies!!! Come dance the night away for FA and know your help is making a difference. Can't make it? Your donation is truly appreciated! Thank you so much! Can't go because you're a dude? Send the ladies in your life and have a quiet night relaxing on the couch. Or just donate and know you have our eternal gratitude ;)
Ladies, attending the dance? Donate at least $12 per adult and $5 per child, and let us know in the comments how many are attending. We'll have your name at the door. Limited space is available.
Tickets may be purchased at the door with cash only. $15 per adult and $5 per child.
All proceeds from the evening are tax deductible and will go to the Fanconi Anemia Research Fund (tax id 93-0995453)
Organizer
Kristin Young
Organizer
Gorham, ME
Fanconi Cancer Foundation
Beneficiary