We Love Everley Strong

Everley was born with Congenital Central Hypoventilation Syndrome (CCHS). There are only 1200 cases worldwide. Children living with this condition do not have the automatic ability to breathe independently when they fall asleep and they require an around the clock care team. Every time Everley falls asleep she needs to be hooked to a ventilator machine immediately. She requires a new  machine (The End Tidal CO2 machine)  to monitor her levels and the present machine she has can no longer be repaired as it is out of production. This monitor costs $10 000. You're support in terms of a donation large or small is very much appreciated.
Click on the link to watch a music video about Everleys story and please share this campaign.
https://www.youtube.com/watch?v=pK1fXdFFdK8