Dean my SON-Shine Boy

Dean’s Story

Dean was born at 37weeks because he stopped growing at 24weeks. When he was born he was resuscitated 9 times. Then because he could breathe on his own he was ventilated. Dorchester hospital could only keep him for a few days before we got sent to Poole hospital. Where he remained in critical condition. Eventually he was put onto oxygen and sent back to Dorchester hospital. Then our baby finally came home to us.

The first year and a bit he was in and out of hospital for long periods of time due to breathing problems. The genealogists were testing his DNA and Genes for different conditions, due to always having poor growth, breathing problems and much more.

Eventually Dean was diagnosed with a very rare condition called ZTTK SYNDROME. This was developed in the whomb. It is a severe multi system developmental disorder, this causes heart defects which dean has, growth problems which he has, eye problems which he is being investigated for, facial deformities which he has, walking problems which has delayed his walking and he might not ever walk. Speech problems which dean has as cannot communicate. Organ failure which dean is showing markers of. Seizures which dean is also having and much more.

We would like to ask for your help to raise money for Dean to have a night watch which will monitor seizures at night. Due to him having prolonged seizures there is high risk of brain damage for every seizure he has. Please help by donating small amounts to save our boys life. He has a Mummy, Daddy and Big Sister who cannot imagine a world without him. If We make more than the goal the extra will go towards other medical eqiupment he needs. He will have this condition for the rest of his life, unfortunately things can only go down hill for my son. Please help him live life to the best he can.

Thank you for all your help Big or Small.