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DeCamilla Family Fund

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Thank you to everyone who has generously supported Mia on her journey through treatment and recovery. We are thrilled to share that Mia, as a cancer survivor, was able to attend her first NFL football game recently as a moment of joy and resilience. However, during this special experience, an awful incident occurred. Thankfully, she is safe and recovering, but it is a reminder of how important continued support and encouragement are for her and her family.


We are deeply grateful for your donation, which have provided Mia's family with financial relief during these challenging times. Everyone has helped to make a difference in spreading her story and inspiring others. Thank you all for being an integral part of Mia's support system!


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Mid-January of 2022, Mia was diagnosed with Childhood undifferentiated embryonal sarcoma of the liver. Mia completed 4 months of pre-surgery chemo. On May 23rd, 2022, Mia had a 12-hour long surgery to re-sect her liver. Mia then followed surgery with 8 weeks of chemo to finally reach remission on July 25th.


Mia will have scans every 3 months to check for reoccurrence. On May 26th she had her 9-month post treatment scans. At her oncology appointment following the scans, they were able to review the x-ray with the team and determined all looked great! Unfortunately, on the morning of the 27th, the MRI final read was posted to include 'new 5mm enhancing nodule in the left lobe with possible diffusion restriction.' This meant one thing; Mia had relapsed.


A CT was immediately ordered to determine if the cancer stayed local to the liver or if it spread to the lungs. On June 6th Mia's CT confirmed that the cancer has not spread! Wonderful news! The plan is to perform extensial surgery which would remove the nodule plus some healthy tissue around it. A piece will be sent to pathology to confirm that this is still Childhood Undifferentiated Embryonal Sarcoma of the Liver. Mia will receive a new port and start post surgery chemo as well. The hope is to have surgery complete and chemo started within the next two weeks.


The entire DeCamilla family is anxious about having to go through this again. In February Mia lost one of her 'cancer buddies,' Maddie, to AML. Mia and Maddie met last spring on the Pediatric Hematology/Oncology floor while both were receiving chemo. Mia has not been back to the inpatient hem/onc floor since she said goodbye to Maddie. Mia's parent's hope is that the majority of her treatment can be done in clinic as outpatient. However, the determining factor of this will be the pathology report.


To ease the family of financial stress and make each day a bit easier to pay for food in hospital, fuel, bills, mortgage, I am asking for any donations that are all so very appreciated.


While we as outsiders feel helpless and can't do alot to support the family, this is the biggest and best way we can support them and help them through this journey once again. Any donations made go directly to Mia's family to put where they need. With both of Mia's parents being Marine Corps veterans, and her mom currently out of work to care for Mia, any support that they receive will be invaluable.


Mia is so strong, brave, resilient, kind, beautiful and will show cancer who is boss once and for all!

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Organizer

Sherry DeCamilla
Organizer
Middleport, NY

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