Hope Grows for Declan Roger;s
Donation protected
Hi
We are raising Money for CRPS treatment for our cousin Declan Rogers that has been diagnosed with a Neurological dysfunction called Complex Regional Pain Syndrome (CRPS)
We are looking for help to raise vital funds and awareness about this extremely rare and excruciating “suicide disease.” CRPS is a condition that is associated with the imbalance and malfunction of the autonomic nervous system. Medically speaking, it is the most painful disease known to man – rating higher than both childbirth and amputation on the McGill Pain Index.
Many people, including Declan who have CRPS describe it as feeling like they are literally being burned alive.
Just when Declan thought there was no hope, we found The Spero Clinic, a holistic medical treatment centre in Arkansas USA led by well-known Quantum Neurology Nerve Rehabilitation specialist Dr. Katinka van der Merwe. Dr. Katinka has treated patients from all around the world with her effective 12 Week Neurologic Rehabilitation program.
We have secured a place for Declan in the clinic for April 15th this year and have his security deposit paid, the duration of Declan treatment is 3 months, and the cost of the treatment is estimated at 50.000 dollars this is the only place in the world that treats Declan's condition. The cost in total is estimated, cost does not includes flights, accommodation or living expenses.
In Declan's own words
Hello
How do I describe this CRPS type 2 that I live with 24hours a day, 7 days a week, 52 weeks a year that has completely changed my life and it is just nonstop throb pain and exhausting.
I thought I knew what pain was, one time I had a bad cramp and sharp pain down my leg, one day years ago I thought I was going to collapse. I would have put it on a scale of 1 to 10, maybe a 7 or 8 tops.
But no, that wasn’t pain at all. Think of the worst pain you ever had being a 10 and then imagine having that pain continuous every day nonstop, like a pure throb, pinch, burning pain, and then triple it.
It’s just pure insomnia, exhausting, uncomfortable, embarrassing, depressing, and excruciating all rolled into one.
I hear people say sometimes, just try and get through each day, but in my mind I just try and get through each hour. Anyone who knows me will know that I am always in good form. That is because I don’t want people to know what is really going on in my world, also I don’t want to bore them with my problems, and I just get on with it and keep to myself.
Nightbird said:” It is so important that everyone knows that I am so much more than the bad things that happen to me”.
I love helping people and I live by 4 principals every day.
1 Always wake up and be in good humour
2 Do as many good deeds as you can in a day
3 Make someone laugh
4 Make someone smile by putting them in good humour.
People ask me, well how are you? I just smile and reply,, ahh sure I’m grand…
But I’m not really... I smile and I love meeting people and having a chat, I know I ramble on, but that’s just because my mind is all over the place, because I’m trying to manage the excruciating burning pulse throbbing pain. I am very strong mentally, thank goodness. Because I am able to switch off when I need to.
Some folk might think I’m mad and that’s fine, ya would have to be to live with CRPS, LOL.
Declan to us is not his disease CRPS.
He is a husband, a father, a friend, a provider, a cousin, a golfer, a human being
And now suffers from this absolutely debilitating disease and deserves to have a decent quality of life without 24 hours of excruciating pain.
Here i am attaching the links of the clinic that Declan will be attending and the treatment he will be undergoing.
Thank you to everyone that has taking their time to read of Declan's condition.
Philip Sera & Mary
Fundraising team (4)
Mary Lynch
Organizer
Declan Rogers
Beneficiary
Sarah Brennan
Team member
Philip Lynch
Team member