Desperate to cure my daughter!
Donation protected
*What is it like to live with CRPS?*
Painful.
Unbearable.
Intolerable.
Depressing.
Relentless.
These are just a few words that describe the condition.
For the past seven years, Synti has lived with Complex Regional Pain Syndrome (CRPS). While she usually pushes through, there are days when the pain becomes too much to bear.
As a family, we have all suffered alongside Synti. Her pain impacts us all, limiting her activities and preventing us from enjoying time together. Some days are easier, but as her mother, witnessing my child endure this daily torment has become unbearable.
CRPS is often described as one of the most painful conditions known to humanity, surpassing even childbirth and limb amputation. It’s known as the "suicide disease" for a reason, and Synti has endured this relentless pain for nearly seven years.
Synti has had Doctors not believe her, question her pain and write her off. She has endured tests and hospital stays, one being a month long in Sydney over covid just to learn to walk again. She has been through hundreds of hours of physiotherapy, hydrotherapy, play therapy, psychology. She has been poked and prodded, jabbed and pushed aside. She has lost friends and yet still everyday she has been in pain.
Recently, I discovered a treatment that could change her life. This innovative therapy has shown promise, providing years of remission for many patients. Some individuals begin their treatment with a pain level of 9 out of 10 and leave with zero pain. How could I ignore this possibility for my child?
After extensive research and countless conversations with others who have undergone this treatment, I learned that while Australia struggles to provide it, a clinic in Italy has achieved impressive results. After persistent communication, Synti has been accepted into the program.
Now, we need to travel to Italy in October for the treatment.
Simple, right? Wrong.
We need to raise between $15,000 and $20,000 to cover passports, flights, accommodation, food, and treatment costs. As a single mother, this amount is beyond my means, but I am determined to do everything I can to make this trip a reality. I’ve started selling items from my home, but every cent counts, and I will not stop until I can get her to Italy for this life-changing treatment.
I am asking—no, I am begging you: if you’ve read this far, please help me give my child the chance to live a life free of pain.
Thank you for your support.
Organizer
Deb Downer
Organizer
Bucketty, NSW