Devon needs help

In 2016 I was diagnosed with a genetic disorder called spinocerebellar ataxia type 1 or SCA-1 and it's similar to ALS. I have all the available federal and provincial grants, subsidies, etc that are available to a "person with disabilities", I get precious help from my friends and my family, and yet I need more. The physical aspects of the disorder cause me to not be able to work. (I'm at the stage where I can't consistently speak, nor type, and this is degenerative.) I need a power wheelchair so I can move around my house. I need ramps so I can get in and out of the house. I will need different support in the future being as it is a degenerative disorder, but this is what I need today: I need counseling, physio, medication, house help, medical supplies, certain foods, a specific vehicle, and such the like also. I know everything is really expensive right now and it makes me want to cry and also I have this debilitating disorder on top of that. Please help if you can. Even five bucks helps.

My Reddit post: I have a genetic disorder called spinocerebellar ataxia type 1 (SCA1) and only have a couple years left. (My onset was about 10 years and this has an unsubstantiated life cycle of 10 to 30 years) The stupid thing is progressing much faster than I have planned- not that I could plan per se, but you know what I mean. Faster than I hoped. I have all the Care and financial support available from my friends, family and the government and unfortunately, I need more.

Honestly, I want to live as long as possible, so I can hang out with my kids. And unfortunately I have financial needs for that. Counseling, specific foods, end of Life Care, disability tools, mobility aids, house help, even clothing that works in a wheelchair... Thank you reddit. https://www.gofundme.com/f/devon-need-your-help

More info: I like to Google the Wikipedia article ffor spinocerebellar ataxia type 1 when I need to direct a caregiver. I recently read there are fewer than 15,000 people diagnosed with this in the US and I live in Canada so it's quite rare here. This disorder was only truly named/discovered in 1993 so there's not much research and that includes the fact that there is no medicine or cure for the disorder but there are treatments for the symptoms. I became a single mom in 2016. I stopped being able to work, because I can't type speak or walk consistently, or even hold things, enough to do even like an hour of labour. I'm getting motorized wheelchair from the government which will hopefully improve things. Please let me know if you need more proof of the situation.