Devon's Journey: Overcoming Transverse Myelitis

Update- All I just want to thank you for all the support and prayers. Everyone who has reached out we are seeing all the messages. I want you all to understand if we are not responding or getting back to you it’s because it’s really overwhelming and hard to keep saying the events that are happening to our precious baby boy over and over aging. As we fight we need to keep pushing forward and check off each event and situation as they come. This is the most terrifying thing we have ever experienced this close to our hearts. As I sit hear writing this I was politely ask to step out so the docs and nurses can sterilize my baby boys room and continue to fight for him for the 5th or so time today. This is really when we get a moment to respond to everyone, regroup ourselves or just cry and feel the feeling of being helpless.

Devon was placed on a ventilator and in a medical induced coma today. He fought very hard and was very strong these last few days he just was getting tired and needed a break. My boy was so strong and to see his face when you tell your son what you need to do was the most terrifying feeling ever. He was so scared and we just had to stay strong for him , but at the same time I just wanted to drop to my knees and scream at god, his left lung in the back and his right bottom lung collapsed. He is in the beginning stages of pneumonia so not only is the transverse myelitis making his lungs weaker so is that. This sucks guys this is the worse nightmare I have ever had. Please just pray for strength and energy to keep fighting and for some healing for him along with his health. Devon strong

These parents are living a nightmare for their little boy. He has a long road ahead, and his parents are trying to be right by his side. Anything will help to eliminate the financial stress this will cause from a boy needing his parents by his side.

This is from his mom’s Facebook page: Update on our Devon . Yesterday, he was admitted into the ICU at Children’s Hospital. They are saying he has a rare autoimmune disease called Transverse Myelitis. They are trying to rule it out, but all tests are pointing to TM. This is a very rare condition that attacks his spine, and the area it is attacking is in the area of the lungs. They are watching him closely at this time. He has had so many blood tests, spinal taps, X-rays, CT scans, and multiple MRIs. He had a bit of a rough night with not being able to get the first spinal tap completed, so they called their brain doc in to see if he could assist, and with lots of work, that doc was able to get the spinal tap successfully completed. His oxygen started dropping a bit, so they did some X-rays of his lungs and upped his oxygen. We are still waiting for the doctors to come do their daily rounds for an update. With all this being said, just please pray for our guy. He wants to go home; he has not been in good spirits, and he is not understanding why this has happened to him. He just wants to be in his own bed and go to school in 3 days, and last but not least, he wants WATER so bad. If you ask if there is anything he needs, he will just say water . Kali is out visiting, so she has been helping with Jordyn and any of our needs. They both are holding strong. For Jeff and me, we don’t know where to start; we don’t know what the future is going to be, and we are terrified for our son. We have broken down in tears trying to find a reason this has happened to our boy, our baby boy. How did he end up with two very rare diseases? He deserves none of this, not one bit of what this world has handed him. You can take 2025 back; I don’t want it. Devon, keep up the fight; you have this, and mama and papa will be right by your side through all of it. Devon strong.