Hey ya'll my name is Jill. I am 33 yrs old now but I was only 31 when the nightmare "started". March, 2023, I got very sick. My mother knew I was in a bad way, and thankfully I live only a few minutes from the hospital (1.5 min. Max.) Little did we know that very, very short ride made a world of difference. The very difference between life and death in the most literal way possible. 5 minutes after getting to the hospital I started fitting (having a seizure) and my heart rate jumped up to 280 bpm, or, 4.5 Beats PER SECOND!!! I went into cardiac arrest followed by a deadly heart rhythm called "torsades de point." Most people do not survive this rhythm (less then 1 in 10 survive.) (A Normal heart rate is between 60-100 bpm)
After a long, painful, and lonely 2 weeks in the hospital, I was finally discharged. I was ultimately diagnosed with heart failure, stress induced cardiomyopathy and a rare life-threatening heart condition called Long QT syndrome (LQTS). My most recent diagnosis are PoTs; Postural orthostatic tachycardia syndrome and Addisons disease.
I have multiple cardiac appointments every month, along with monthly P.C. appointments. I have multiple different Specialists I have to see on a monthly basis. Monthly blood draws. And this does not include all of the medications I now have to be on for the rest of my life.
I have been unable to work since March of 2023. I don't know when or even if I'll ever be able to return to work again. I was denied Disability after my first attempt(which I've heard is typical/usual). I did APPEAL. Which we all know it will be another few months (at the very least) of hoping and praying they will approve it.
This has absolutely been the hardest thing I've ever had to face. My life is forever changed. There is no more "normal." This, is MY new "normal." A "normal" in which people can never and will never comprehend unless they themselves or a very close loved one is going through. A "normal" in which I can't even plan 1 day in advance let alone a week or longer. A "normal" in which I'm completely drained from just walk up 1 flight of stairs...I am 33 yrs old and 1 FLIGHT of stairs can take me out? After being a fierce multi-sport athlete from 3 yrs old until senior yr of high-school how do you take that as your "New Normal?" It's devastating. It's absolutely heartbreaking. But there is no denying it or pretending things will get back to the old times...THIS IS MY NEW NORMAL.
Your donations will truly help with day to day expenses, monthly medications, travel to appointments, and everything in-between. It will help not only ME but also my full-time caregivers, MY PARENTS, help navigate this life changing situation. Find the best doctors, cardiologist, Mental Health providers, ect. ANY AND ALL DONATIONS HELP, I understand if you can't donate, it's a tough world! But please share this to friends, family, coworkers, literally anyone. Please
Please Share. Please donate!
I'll continue to FIGHT my FIGHT for as long as I can.
Thank you all for your time and consideration. I appreciate this and more importantly, YOU, more than you'll even know.
Thank you.


