Baby Dino's Miracle Fund
Donation protected
Dearest Friends, Family and Supporters,
I am setting up this account for our younger sister Megan, her boyfriend Justin and their extra special son, our nephew, Dino Maggio Martino. Born November 5th, 2015. Dino is the most beautiful baby boy. He is so sweet, full of love and when he smiles he completely melts your heart.
On December 8th, 2015, Dino was diagnosed with a vary rare, life threatening disease, Isolated Type 1 Lissencephaly. Better known as smooth brain, the folds and ridges on the outer part of the brain did not develop. We were lost, devastated and heartbroken. He may never enjoy the simple things in life like crawling, walking and talking, those simple things that most of us take for granted.
Why Dino......only ELEVEN in ONE MILLION babies are born with this disease.
Dino has difficulty swallowing, gastroesophageal reflux disease, muscle spasms, poor muscle tone and seizures daily. Each seizure gradually increasing in length. Dino is prone to feeding problems, pneumonia, aspiration and respitory disease. Dino takes medication morning and night to help maintain his seizures and keep him comfortable. The Doctors give Dino One or Two years to live, with no more than a 3-6 month year old progression. There is no cure, no stopping the inevitable but our family is willing to try anything and everything to fight for a life time, for his lifetime. We are asking for your prayers, and for any help to off-set any unexpected medical treatment, medical bills and monthly trips to UCSF. And additionally to give Dino the best care, love and life he deserves. This help will enable Megan, Justin and Rocco to be by his side to provide him with all the love and attention he needs. Their little boys are their world, their everything.
We believe this angel was given to us for a reason. He is here to make us happy, bring our families together and teach us the value of life.
Dino will bring LOVE & JOY to all he touches, until the day he earns his wings and beyond.
Thank you for ALL of your love & support.
I am setting up this account for our younger sister Megan, her boyfriend Justin and their extra special son, our nephew, Dino Maggio Martino. Born November 5th, 2015. Dino is the most beautiful baby boy. He is so sweet, full of love and when he smiles he completely melts your heart.
On December 8th, 2015, Dino was diagnosed with a vary rare, life threatening disease, Isolated Type 1 Lissencephaly. Better known as smooth brain, the folds and ridges on the outer part of the brain did not develop. We were lost, devastated and heartbroken. He may never enjoy the simple things in life like crawling, walking and talking, those simple things that most of us take for granted.
Why Dino......only ELEVEN in ONE MILLION babies are born with this disease. Dino has difficulty swallowing, gastroesophageal reflux disease, muscle spasms, poor muscle tone and seizures daily. Each seizure gradually increasing in length. Dino is prone to feeding problems, pneumonia, aspiration and respitory disease. Dino takes medication morning and night to help maintain his seizures and keep him comfortable. The Doctors give Dino One or Two years to live, with no more than a 3-6 month year old progression. There is no cure, no stopping the inevitable but our family is willing to try anything and everything to fight for a life time, for his lifetime. We are asking for your prayers, and for any help to off-set any unexpected medical treatment, medical bills and monthly trips to UCSF. And additionally to give Dino the best care, love and life he deserves. This help will enable Megan, Justin and Rocco to be by his side to provide him with all the love and attention he needs. Their little boys are their world, their everything.
We believe this angel was given to us for a reason. He is here to make us happy, bring our families together and teach us the value of life. Dino will bring LOVE & JOY to all he touches, until the day he earns his wings and beyond.
Thank you for ALL of your love & support.
Organizer and beneficiary
Candace Marie Tantarelli
Organizer
Santa Rosa, CA
Megan Tantarelli
Beneficiary