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Help us fight Aplastic Anemia with Mia

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Mia Nyack is our sweet, artistic, and caring daughter who is 8 years old. Earlier, this year around April we noticed her eyes were completely yellow. We rushed her to the doctor where we found out she had lethally high liver enzymes she was discharged the next day with meds to bring them down. 2 weeks later after a routine bloodwork ordered by her pediatrician her liver enzymes were even higher. Her pediatrician advised us to bring her to Nemours right away after a little less than a 2-week stay, antibiotics, and a liver biopsy we found out that she had Chronic hepatitis but the cause was unknown. After discharge we tried to go back to normal. I had lost a good-paying job around this time so I was picking up lots of shifts to catch up on bills and still provide my kids with a fun summer as much as we could. The Juandice went away but around July Mia caught something like the common cold but it gave her chills and a constant fever every day I came home from work she was lying down and mucus just spilling out of her nose. My heart dropped. I felt like a bad mom for working so much and not catching it sooner. After the 4th day, she didn't want to go to the hospital because she was petrified of needles to this day every week she cries and fights when she has to get an iv and do bloodwork it's the hardest part of our journey, but I had to put my foot down. When we went to the ER they swabbed her thinking it was a common virus as did we The results came back negative as they were prepping for her discharge her dad and I asked for them to do bloodwork on her to make sure her liver was looking good. After an hour of waiting for her bloodwork, her nurse came in and told us that she had less than .01 of white blood cells which meant that she had no immune system. Normally when that is mentioned leukemia is considered. I went into the bathroom and sobbed the most I've ever done in my life and begged god to not allow Cancer in my daughter's body. We were transferred to St. Marys's Hospital in South Florida where they immediately started testing and did a bone marrow biopsy. We had an infectious disease, hematology/oncology, and peds following us. It felt like forever honestly waiting for results. The results came back that it was not cancerous and we could breathe again. We did have the infectious disease team tell us that she had mycoplasma Pneumonia in her system which is believed to have caused everything including her hepatitis. She was able to be discharged after a week of waiting for her fevers to stop and a few blood and platelet transfusions to help her bone marrow work again and on its own. We were seeing hematology outpatient but every week we had to go to inpatient for transfusions because her blood counts were going lower and lower. After a month her doctor asked for a repeat bone marrow biopsy. After waiting a week Mia was diagnosed with a rare blood disorder called Severe Aplastic Anemia which is ruled out as bone marrow failure. In our family, her brothers Kalel and twin Daryl along with her dad and I have recently been tested to see if we can donate our bone marrow to her. This road is tough but God is so amazing We've raised a bit over $4000 but we need more. I have given up an amazing job that I recently have been offered in ministry and her dad works hard to pay our bills and support our family. Bone marrow transplant requires the patient to be in the hospital for at least 6-8 weeks depending on the outcome. As well as intensive autoimmune and chemotherapy. We've chosen to have her bone marrow transplant at Memorial Sloane Kettering Cancer Center in NYC to ensure the best possible for our daughter. The money donated towards this GoFundMe will help with bills, monthly mortgage, and travel. We thank each and every one who has given we ask that you continue to pray for us and give what you can.
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Donations 

  • Anonymous
    • $100
    • 8 mos
  • Anonymous
    • $50
    • 1 yr
  • Anonymous
    • $50
    • 1 yr
  • Anonymous
    • $150
    • 1 yr
  • Shade Adeyinka
    • $50
    • 1 yr
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Organizer

Apple Adeyinka
Organizer
Port Saint Lucie, FL

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