
Help us to be with Oliver in Crumlin❤️
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Hi! My name is Kitti and I am fundraising for our family to be with our son Oliver.
here is our story: Oliver is and inpatient in Childrens Hospital Crumlin. Oliver is in Crumlin since the 06. of October 2023 ( since the day he was born). Oliver bowels were twisted, burst while I was pregnant with him. We found out something was wrong on the 28. Weeks ultrasound. They could only see some fluid in his abdomen and I was in and out of hospital to monitor him. 2 weeks later it was clear that he had to be born in Dublin ( we live in Crok 2.5 hours away) because he needed an emergency surgery when he was going to be born so I was transferred and at 35 weeks 2 days he was born via C-section, that night he had a major abdominal surgery to remove part of his bowels ( 45 centimeters) because it was in pieces everywhere in his abdomen and to remove a cist that was attached to his liver, and the meconium that ended up inside his abdomen. He got a stoma bag that day. Oliver was in PICU( Peadiatric Intensive Care Unit )and on day 2 after his surgery he had a blood clot in his left arm, and he had really low blood supply there. But he fought through that, and after 2.5 weeks he was moved to the Neonatal Unit. He was in incubator for another 3 weeks, and was big enough to leave it❤️ on the 3rd of november I came back home to my little girl because we have no family support they live too far away and working . On the 8th of november an incident happend where a hole was made on his bowel. The procedure was to get his stool out of the stoma bag, and through a tube get back to his bowels through his fistula( the bowels he had left from down below) during this procedure accidently one of the surgen made a hole on his bowel and his own stool ended up in his abdomen , and was going for 12 hours when the doctors realized something was wrong with him. He had an amazing nurse that day who was sure Oliver was not himself and was in so much pain. She was asking the doctors to review him and made sure someone was listening to her.His surgen made a contrast study and was clear that there is a hole 5 centimeters from his fistula and it was infected. Oliver’s body started to shut down and got a septic shock. He was rushed to theater that night to clear out his abdomen and clean his bowels. He went to PICU after that and was there for several weeks. We were told to prepare for the worst because he got really sick and was kept sedated on the ventillator for weeks. He had a bleed in his brain and fluid around his brain as well meningitis also from the septic shock. After several weeks he was able to breathe on his own and started to clear out the bacteriums with antibiotics . 2 weeks later he was in PICU again because he had left some of this infections in his abdoman ( probably a small amount of stool was left) snd had another surgery when they took another 10 centimeters from his bowels and cleared everything out again. Before christmas he was in Neonatal Unit again recovering nicely and I could be there for 6 weeks because my father could help me take Kamilla ( the big sister who is 2) to his house in Hungary so I could be there with Oliver. Kamilla came back on the 6th of january and I was in Cork again with her. It was really difficult to leave Oliver in the hospital again. Shortly after that he had a respitory infection and spent 1-2 weeks PICU again on the ventillator. He had multiple blood clots and was cleared out thankfully. We finally had a date to the stoma reversal surgery and it was done on the 6th of March.The donation itself would go to finance the travelling to Dublin and back and to pay for the Ronald Mcdonald house room where I am on the waiting list again so we can be there with Oliver more than just once a week. After 6.5 months of Oliver bering there it is getting really difficult financially to drive to Dublin and back with our 2 year old. We were in the Ronald Mcdonald house already for 3 weeks but I had to gave up to room because Kamilla looked like she was sick and she slept 17 hours. After that i decided we had to come home to Cork for her wellbeing. Oliver is currently getting his TPN , bottle feed, and introducing solids. We are waiting for his bowels to start working normally and come off from TPN so he can come home, but this is still months.
Oliver has his nurses but everyday for a 6 month old is not enough, and developmentally he is behind. We really miss him but cant pay for the travelling only once a week. Thank you everyone who can help us make Oliver ‘s recovery easier❤️
Organizer

Kitti Sodar
Organizer
County Cork