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Yenmar's Medical Treatment Overseas

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Yenmar inicio con convulsiones desde los 5 meses de edad. Yenmar fue diagnosticada con el Sindrome de Dravet. El 27 de Julio de 2012, a sus dos anos de edad tras haber estado continuamente en terapia intensiva dado a recurrentes ataques epilepticos.

Yenmar hoy en dia a pesar de sus crisis convulsivas es una niña de 5 años feliz el amor y el apoyo de toda la familia y las personas que la rodean y las ganas de nosotros sus padres de seguir adelante y brindarle una mejor calidad de vida. A yenmar le gusta mucho comer, la naturaleza, los animales, socializa con sus compañeros de terapias. Nos demostró con lo fuerte que es ; que la fortaleza es su gran don , que nos manipula con sus besos y abrazos, celebramos cada avance que nos demuestra . Y damos las gracias a Dios por tenerla en nuestra vida.

Aun con tratamiento yenmar siguió con crisis convulsivas,postvacunales , crisis en ausencia, demostrando ser refractaria a los diferentes tratamientos sugeridos por los especialistas.

Con mucho sacrificio económico yenmar asiste a dos de sus terapias y amerita de un tratamiento de $5000 que ofrecen en Mexico Centro Edelfo Chihuahua. Para regenerar un 90% sus neuronas su parte motora y plasticidad cerebral, disminuyendo sus crisis convulsivas .  Contamos con tu aporte para que este tratamiento sea un logro mas en la mejora de su calidad de vida.

ENGLISH 

Yenmar started having seizures since she was 5 months old. Yenmar was diagnosed with Dravet Syndrome. On 27 July 2012, she was two-year-old and she has had been continuously in intensive care given to recurrent seizures.

Yenmar today despite their seizures is a 5 year old happy girl who has the love and support of the whole family and the people around her. It is our desire of us parents to go ahead and provide a better quality of life for her.  Yenmar loves to eat, she loves nature, animals and socializes with her co-therapies. She has demonstrated how strong she is; that strength is her great gift. We thank God for having her in our lives.

Even under treatment yenmar kept having seizures, crisis absence, proving to be refractory to different treatments suggested by specialists.

With much economic sacrifice yenmar attend two of her therapies. There is a treatment in Mexico Centro Edelfo Chihuahua that costs $5000 and the goal is to regenerate 90% of her motor neurons and brain plasticity part, reducing their seizures. We really appreciate your help to Yenmar. Please spread the word, and if you can please donate. We will always be thankful for you donation. God bless you.

Organizer

Julie Herdz
Organizer
Miami Beach, FL

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