
Saving baby Luka CDH
Donation protected
Hey everyone! Many of you know our story but I haven't updated in a while.
Luka is now 5 Months old and doing AMAZING! It was a very rough rollercoaster with some highs and the lowest of Lows but he fought and overcame many of the obstacles. However, its nowhere near over. CDH doesn't end when you discharge from the hospital. We will be on this journey for years to come just hopefully from our home back in Tennessee. A summary of his progress; He was on ecmo for 13 days, intubated for an additional 59 days, CPAP for 28 days. A total of 8 surgeries in 4 months. There are a lot of details in the middle of each of those as to what has happened because its just simply too much to tell. All that being said Luka should be discharged in the next few days! YAY!! My family is beyond ready to be back home in Tennessee, we haven't been home since Thanksgiving 2022. Now we just have to figure the best way to get our family of 9 back home. The best plan is to have my husband take the van home with our kids while Luka and I stay back and my husband fly back and we drive home in the truck. That way we can take our time getting home with a 5 month old and him not be stuck in a car seat for 13 plus hours, that is just not feasible. All that being said im resharing this gofund me to hopefully get some help with traveling expenses and my husband a plane ticket back to me so we can drive home together and not be stressed. This journey has drained not only our mental wellbeing but also our bank accounts, so any help would be greatly appreciated and thank you all again who have shared and prayed for us on this journey of CDH. We couldn't have done it without you all! God Bless!!!
Hello my name is Sasha, I am currently 31 weeks pregnant and due to have my CDH baby Luka January 30th if i do not go into labor before then. I reside in Nashville, Tn but temporarily relocated to St. Petersburg Florida to receive care at the best CDH program in the United States, John Hopkins All Childrens Hospital. Everything was all set and planned and everything was falling into place. However the house that was going to be provided to my family and i had a few temporary unforeseen circumstances happen so that has delayed the move in time a little bit. So i am looking for another airbnb from January 1-February 1. I spent all of my savings to book this current airbnb i am in to get me through until the house became available so I’m looking for a miracle to help me stay and save my baby. I have fought so hard to get here and give him the best possible outcome when he is born and id hate to give up now when I’m at the finish line but if I don’t have a place to go for my kids and I for a month then ill have no other choice but to call it quits and head back home. If i do that then there is no way my baby will survive so i really need the help, if you could please find it in your heart to help me find a place for January 1- February 1 then please donate. I know times are hard for everyone especially with Christmas around the corner so i do understand this is a long shot but its my very last hope i have to save my baby. They say it take a village and it most definitely does. Can you please help be my village? God bless you all!
Organizer
Sasha Thompson
Organizer
Nashville-Davidson, TN