Hope For Evie
Donation protected
Our Daughter Evie is 5 years old
Evie was diagnosed at 5 months old with a very rare condition called MICPCH it is a micro chromosome deletion on the CASK gene which affects half the cells in the body which also causes a brain condition.
When Evie received her diagnosis at 5months old we where told Evie would never walk talk or even sit unattended, Evie is fighting daily to prove some of this to be wrong.
Having a child with a rare brain condition we have learned intensive therapies have been the most impactful in growing her skills both cognitively and physically.
Evie is lucky enough to have been accepted to Napa Boston (June) & Napa London (Oct/Nov) both been a 3 week intensive program and both come at a huge cost, Evie will partake in multiple daily sessions of Physiotherapy, Dmi therapy Occupational Therapy and
Speech & Language therapies
Evie will benefit massively from both of these incredible intensives, please help give our little girl a chance at reaching her goals and continue to help us access all the private therapies she deserves.
All funds raised will go towards getting Evie to Napa Boston Napa London and private therapy.
Anything at all is greatly appreciated.
Thank you for coming along on this journey, it means the world to us.
follow Evie’s journey on her instagram
Organizer
Emma Nolan
Organizer