Medical and travel expenses






Beth has a rare condition called pfieffer syndrome type II. Pfeiffer syndrome is a condition in which certain sutures are fused prematurely. It causes her to have a high forehead and pointed shape to her head. Type II occurs in 1/200,000 births. Charateristics that make Beth a type II are her fused elbows and cloverleaf skull. Cloverleaf is a term for how the sutures in her head are fused. It can make sugery a little more difficult and time consuming.

Doctors know which gene causes pfieffer syndrome but they aren't sure what causes it to mutate. It is the mutation of the gene that causes premature fusing of the bones in the skull. Pfeiffer syndrome is considered random and not genetic. It makes it a little hard to accept that we don't know why this has happened but we are doing the best we can to help Beth have as normal of a life as possible. We are looking forward to all she will accomplish in the future.

All of the funds raised will go toward Beth's medical and travel expenses for various sugeries and procedures in the years to come. We will have a few bills over the years that insurance is unable to cover. Her doctor estimate she will need about 3-4 cranial surgeries and a few plastic surgeries as well. Hopefully her final surgery will be around 17-18 years old.

Currently Beth is 3 years old and doing very well. She loves learning sign language and playing with her new brother. Although she hasn't started walking yet we pray that one day she will. She is tough and we are so proud of her.

Heath and I appreciate anything you can do to support us. If not financially then we ask that you continue to pray for our family. That is the best thing anyone can do. We love you and thank you!