Eastons journey

hello everyone when we were pregnant with easton and his twin sister everlee we went in to have an ultrasound done and found out that Easton has a congenital heart defect called tetrology of fallot and would need surgery at around 4 to 6 months of age as long as his heart stayed the same and he could gain weight . well at 34 weeks I had him and his sister and they were intubated and he was in the nicu with some unrelated issues with his respiratory rate being high and not knowing a sure fire reason why.  He was sent home at 6 weeks old and we've had 2 hospital stays bc of his respiratory rate being high and having rhino virus and then pneumonia and now we are here again bc he wasn't gaining any weight and they said he was in heart failure and put him on a new medicine. Well the heart surgeons decided they didn't want to do his open heart surgery until we got the lung issue figured out as our CT of the lungs came back abnormal so now we are trying to figure that all put first before they can even consider his surgery.  So we have been in the hospital now for almost 2 weeks and still don't have answers and with all the drs appts and hospital visits I haven't been able to go to work and with having 4 other kiddos at home we've been really struggling with bills and food and gas going back in forth and we are asking for donations to get us past this next few months. Anything helps and we appreciate all the people who have already donated.