Nash
Donation protected
Hello, this is very hard for us to have to do but I will try to make it as short but detailed as possible. When I was 3 months pregnant with Nash in 2011 we went in for a routine ultrasound. Little did we know it would be anything it "routine" from that day on. We were given a diagnosis of Spina Bifida along with all the worst case scenarios. However, there was a (newly out of trial phase) procedure for In utero repair. We knew with God and our support system that everything would be ok and we had to give Nash the very best chance possible. We had to travel to Nashville Tennessee to have the surgery and I was put on bed rest for the remainder of the pregnancy. The surgery being done while 4 months pregnant did help greatly. He was born with Spina Bifida, hip dysplasia, bilateral clubbed feet, a neurogenic bladder and neurogenic bowels. Nash uses a wheel chair. He was using a walker with AFOs occasionally and about to start practicing with arm crutches. THEN.. the pandemic. Nashs arm crutches were never delivered, he wasn't able to get his new AFOs, appts, etc. His feet started curving back in and slowly he started feeling unwell more often. His pediatrician told us his immune system was just not that strong. In late 2023 (November) I took Nash in for his check up. His Dr noted a heart murmur and higher than usual blood pressure. He thought Nash had a virus and that was it. Nash continued to get worse and his Dr thought he developed RSV because Nash was coughing so much, saying it was hard to breath and he couldn't lay down on his back. I took him back in (January 2024) and this time his Dr finally did lab work, prescribed nebulizer treatments and steroids for the cough. The next day at 6am we received a call that Nashs lab work wasnt good and he needed to be taken in to the ER immediately. He was admitted to the pediatric intensive care unit. Here we were again just like before he was born, the dreaded heartbreaking talk in the hospital conference room. Every parents worst nightmare and it was devastating to say the least... Nash was in Heart failure and kidney failure. It's been 2 months and he's still in the hospital. Nash has needed blood transfusions, dyalisis (including a catheter in his neck), mid lines, picc lines, surgeries, many procedures, labs,etc. He is on a lot of medications and a very strict diet. He recently got diagnosed with a teethered spinal cord. We now know everything he is going through has been effects of the Spina Bifida. It has been emotionally, physically and mentally taxing. Nash is so positive and charasmatic. He is such a an amazing, strong, brave young man. We are so proud of him. We are asking for donations for him and all his needs that his insurance don't cover and to get everything we need ready for him. He will have several weekly appointments with multiple specialists, special foods for his strict diet, medical supplies (blood pressure cuffs, special shoes, wheelchair, other personal supply needs). It's going to be a very long, hard, ongoing journey. We have 3 other children as well and the daily back and forth trips to the hospital has been costly and put extreme wear on our vehicle that it is not safe to travel with him in until some repairs are made. We understand it's very hard financially and donations aren't always possible but anything helps and prayers are always welcomed. Hug your kids every chance you get! God bless you and your families.
Organizer
Andrew and Natalia Sanchez
Organizer
Bernalillo, NM