Elizabeth H Beyer's fight with MSA

Elizabeth has a rare disease known as MSA Cerebral. This disease is debilitating. It slowly deteriorates your entire nervous system.

On December 18th, 2013 Elizabeth passed out in the bathroom. She woke up in a pool of blood and didn’t know what happened. It was a shock. Devasting at the time, but we had no idea how devasting it would ultimately be. Fast forward 9 years later, lots of fainting spells and concussions. Elizabeth has bowel and urine incontinence. She is no longer able to work, drive, or walk up and down the stairs by herself and she’s unable to stay standing for long periods. She is in the emergency room 3-4 times per year and is often admitted for longer stays. It was only the beginning of this year, she had a heart attack. She’s only 47. No blockage, just MSA taking its toll. After 12 days in ICU where you just didn’t think she was going to pull through it, she did. She's left with additional trauma but she's fighting. Now, I am approaching each day differently. I wish you could meet Elizabeth, maybe someday you will. She’s genuine, sweet, loving and an amazing wife and mother. We don’t know what God’s intentions are, but we are staying positive and taking it one day at a time with great thanks for each day we have.

She has MSA. Multiple Systems Atrophy. This is a rare neurological disease. The primary effect is, pure autonomic failure, where your body functions can't be controlled: Like, low blood pressure – which makes you feel dizzy – lightheaded, makes you faint when you stand up from sitting or lying down or just standing too long. She has slurred, slow speech and gets visual disturbances, like blurred or double vision and difficulty focusing her eyes, which leads to massive headaches. She has difficulty swallowing or chewing. This is a really difficult illness. Life expectancy with MSA is hard to imagine, so we aren't focused on that, instead, seeking hope. Looking for something that can alleviate the pain and help rid her of this disease.

The experts don’t know what causes MSA. There’s currently no cure. But, we are looking for hope around every corner. We are chasing every option for a cure. We are searching for clinical trials, new progressive opportunities, and even new ways to just live a more full life.

We are looking for support as we take on this challenge and confront the obstacles and reality in front of us. We don’t know how much time we have, but we are going to fight to overcome MSA. We are chasing a cure. We need help with our medical debt and support as we engage in homeopathic remedies and focused trials and clinical studies. We have found 2 potential opportunities and looking for more. We are searching for anything that offers hope, whether it's within the larger medical community or natural, homeopathic treatment. If you know of anything, please send us a message. We are searching high and low. There's a trial in Italy that has shown great promise, it's now in the second stage. We'd love to become part of this study if it continues showing promise.

We are also looking for an RV. An RV can help get her to test centers in the country. Traveling is a challenge, but with an RV, she would have her medication, food, and bed close by. Her illness often prevents her from taking long trips. If anyone knows of an RV we could use, or has one at a cheap price or we could rent, we are interested.

With your help, Our first journey will be to the Riordan Clinic in Witchita Kansas. They focus on Vitamin C IV therapy, UBI, Regenerative Injection Therapy, Nutrient Injection Therapy, Pulse Electro Magnetic Therapy and so much more. For over 47 years this group has made huge impacts on patients with a progressive illness.

We will create a social page dedicated to this fight. Although Elizabeth is not excited about being seen in her weakest states, she knows this fight could help others. We look forward to sharing the journey and journaling the good and bad. We can see God at work within the clinics.

We appreciate your consideration.

Chuck and Elizabeth