Ella's fight against venous malformation

In March of 2014 Ella was born a seemingly healthy, beautiful, and perfect baby girl with a very small port-wine stain birthmark on her right hand. Doctors said it was nothing more than a birthmark and went on to love this spunky, fun-loving little girl. Soon before her 4th birthday, we noticed swelling and bruising on her right thumb. Three doctors and a month later, she was diagnosed with a Vascular/Capitulary Malformation a life-long incurable painful disorder that will continue to grow she does, leading to many complications. As parents, we were horrified, especially with it being so rare and associated with other more serious and life-threatening disorders and possible amputation. We were sent to a "specialized" IR doctor, where she was given a sclerotherapy treatment to help shrink the tumor. It went terribly wrong and Ella was admitted to Dell Children's hospital for infection and burns. She was released three days later and had to have debridement treatments every two days for a month. She almost lost her thumb and it was truly traumatic for everyone involved. It was decided then and there that insurance would not dictate who treats our child and sought treatment through the Vascular Anomalies Center at Texas Children's, with the eventual goal of seeing Dr. Wayne Yakes in Englewood Colorado. Dr Yakes is a pioneer and leader in vascular malformation treatment, and after three years of working toward this goal, we are very excited Ella has been accepted as a patient and he is performing a series of treatments on Ella in the hopes of getting a clear MRI! Ella's growth has started up again and started to spread through her hand, which unfortunately means more treatment, but hopefully, we can save the use of her hand, reduce and manage her pain, and preserve her love of gymnastics, art, and swimming. With your help, we can change her life. We are humbly thankful to all. God Bless.