Support Spencer's Fight Against GABRA1

Friends, Family, and Kindhearted Strangers,

Our beautiful daughter, Spencer, was born with GABRA1, a rare genetic disease that will have a profound affected on her life. GABA-A variants are a group of genetic disorders that cause debilitating neurological symptoms. Despite her bravery and sweet demeanor, she faces daily challenges that no child should have to endure.

For Spencer, her GABA mutation expresses itself through motor, speech and cognitive delays, feeding difficulties, and numerous GI issues. Spencer is fed through a feeding tube and will mostly likely never learn the ability to walk or talk. As a result, Spencer requires ongoing medical care, therapy, and specialized treatments, many of which are not fully covered by insurance. These treatments are essential to improving her quality of life and providing her with the best chance to thrive.

We are sharing our story in hopes that we can bring awareness to all families affected by rare disease. To that end, if you can, we are asking for your support by joining our fight and helping us advocate.

Donate. We can’t do this alone, and every donation, no matter how big or small will bring us one step closer to giving Spencer the help she needs and live a life as full as possible. Donations will help support research, clinical trials and other forms of therapies. In addition, this will help support Spencer directly in the form of medical expenses, treatments, equipment and specialized therapies. All of which build upon each other to make a difference in her quality of life.

Thank you for being a part of Spencer’s journey and for showing her that she is loved and not alone in this fight.

Our deepest gratitude,
The Levitt’s - Patrick, Megan, Calvin & Spencer