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for a transplant (empty nose syndrome)

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French/English: Je m appelle Audrey, 37 ans et je suis dois subir une greffe nasale pour me permettre de respirer correctement car j ai subi des chirurgies sinusiennes qui m ont detruit au point que je vis enfermée depuis 6 ans, j ai tout perdu, voiture, travail, autonomie. J ai besoin de l aide même minime pour m aider à financer mon operation car ma maladie s appelle syndrome du nez vide et entraîne des souffrances nuits et jours et en France, ils ne savent pas réparer. Je vous demande de partager au max et participer même 1€ merci beaucoup.

My name is Audrey, 37 years old and I am suffering from empty nose syndrome which is expressed by chronic hyperventilation 24 hours a day which has handicapped me in my daily life since the end of 2015 following rhinosinus surgery. Following a chronic maxillary sinusitis, I was presented with this operation as trivial and that day, it was as if I had been buried alive. I ended up with catastrophic breathing resulting in extreme fatigue, dizziness, numb legs 24 hours, blurred vision, muscle cramps, abdominal pain, sinus pain, chronic headache, dyspnea, shortness of breath from the slightest effort, catastrophic sleep with startled waking up because I was suffocating, nausea 24 hours a day. Overnight I could no longer drive, shop, go outside, or have the pleasure of sleeping and therefore no longer working. No treatment would relieve me. I subsequently underwent 4 other operations of the same type in order to find breathing similar to before and my condition deteriorated. I suffered over the laser on the turbinates 4 times to supposedly let the air pass better but it had the opposite effect since all my symptoms were worse.When an excessive amount of the turbinates are removed or damaged, the nose loses its ability to properly pressurize, direct, temper, humidify, filter, smell and sense the flow of inspired air. The natural respiratory synchronization between the nose, mouth and lungs is also disturbed. This gives a paradoxical obstruction. 

It is necessary that I reduce the opening of the sinus which was too wide open and restore volume to the mucous membranes (the turbinates) in order to reduce the too large volume which enters it and which therefore generates this hyperventilation permanently without my I have control over it. We have the impression that we are in an anxiety attack 24 hours a day, as if paralyzed from head to toe. When I walk I feel like I'm going to pass out. I am unwell all the time, with nothing helping me find respite.Following research through foreign forums, we are lucky to have ENTs in Italy and deustch who know this disease and who have good results following restorative surgeries with cartilage or rib implants in the nose in order to reduce the vacuum that has been created and redirect the air to the upper parts properly. It is my only hope to get out of it or even have my symptoms greatly reduced. I consulted 2 who offered me this transplant in italy but being alone and no longer able to work, I cannot finance it so I am appealing to your generosity to help me get out. I want to find a semblance of normal life, 5 years that I am locked in suffering at home. Please help me. I am embarrassed to make this pot because I have always been independent but I am really in a situation of handicap today. I thank you in advance. Thanks everyone!

Organizer

Cindy BRITO
Organizer
Paris, A8

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