Ethan’s Army

Ethan is a 13 year old boy who was born with a rare disease called a Leukodystophy.
The leukodystrophies are a group of rare genetic disorders that affect the central nervous system by disrupting the growth or maintenance of the myelin sheath that insulates nerve cells. These disorders are progressive, meaning that they tend to get worse throughout the life of the patient.
There is currently no cure for , all therapies are supportive.
Ethans’ love for life has already exceeded the doctors expectations with the prognosis for this disease.  

Ethan has an infectious smile and is loved by everyone he meets! Even those who haven’t met him, can feel his contagious personality just by seeing his smile.

Every mother deserves to spend as much time as possible with their children.   Recently, Ethan’s disease has begun to progress.   Our hope is that we can raise enough money so that Jen can stop relying on healthcare workers to care for her child, stop working 3 jobs, and be able to take some time off without worrying about finances.  Jen is a devoted mother that never complains and deserves time with Ethan without stress and burden.  

All of the money raised will go to help Jen pay and care for Ethan so she can work less and spend more time caring for Ethan.   Unfortunately, Jen is not sure how much time she will get with Ethan so anything we can do to help  will be beyond appreciated.