Everly receive the therapy she needs!

Hi, I am Everly's mom, Crystal. When Everly was 13 months old she was diagnosed with a rare disease called Salla, free sialic acid storage disorder. When Nationwide Children's called to tell me what she had they said the only thing we could do to support her is therapy. So we do a lot of therapy. Salla is a disease that affects her neurologically and later in life will become degenerative. At this age (5) it is very important that we get Everly all the support we can get for her. We have goals of Everly standing on her own and even taking steps.

Recently I signed her up for intensive pediatric therapy which usually takes a year or 2 to get into. I was late signing up so I expected late 2024. Well NAPA center called last week and pulled her off the waitlist for March 20th, 2023!! Perfect timing as her recent therapist has said they believe they have done all that they can for her. Bad timing as we have had no time to prepare funds for the long trip. She was accepted to the Austin Texas location so we will have to fly and get a place for 3 weeks. Of course, this type of therapy is not covered by insurance so I am asking everyone I know to please consider a donation so we don't miss this opportunity.

At NAPA Everly is set up to receive 75-85 hours of Physical, occupational, and speech therapy(including learning a communication device), and dynamic movement intervention. Feel free to reach out to me with any questions about Everly and the therapy she will receive at NAPA. Pricing and descriptions can be seen on their website napacenter.org