Join the Ewell Sisters in their fight against CRPS

Hi, we are Eddie and Lisa and the parents of Kaylee, Raegan, and Brooklynn Ewell. We also have a son, Carter. Our family has been on a very long medical journey with our girls. They all have a rare disorder called Complex Regional Pain Syndrome. It's ranked the highest form of chronic pain in medical science today. There is no known cure though some have gone into remission.

Kaylee has suffered with it the longest, since 2017, she was 14 at the time. Over the past 6 years she has been to countless doctors, taken multiple medications, and endured hours and hours of physical therapy and treatments. During that time she was diagnosed with 7 additional incurable disorders. Kaylee's CRPS started in her shoulder and has spread to affect her whole body. We had no idea what we were in for back in 2017. It has been a long hard road for her and she continues to fight daily.

In August of 2021 Brooklynn broke her ankle going down an inflatable slide. After a couple months of slow healing she was diagnosed with CRPS. It was devastating as we were all too aware of what this meant for our baby. She was 9 at that time. CRPS quickly spread and after 6 months she too had full body CRPS. It was difficult to find any medical care for Brooklynn because she was so young. The only thing she was offered was medication which did nothing for her even on the highest dose. We found a place in Arkansas that treated CRPS patients and got both Kaylee and Brooklynn accepted for care. This was a different approach than the usual western medicine we were use to, but many people had great success. We spend 6 months of 2022 there. The treatments were extremely expensive, out of pocket, and not covered by insurance, but our family and friends from all over pitched in to help us raise enough to cover their care. The program helped Brooklynn regain full use of her arms and she is now able to walk short distances. Kaylee learned a lot about her condition and was able to safely get off the pain medication she'd been on for years but she was not as successful as Brooklynn in helping her CRPS.

While in Arkansas, Raegan fell while wading in a creek. She injured her hip and leg and was also diagnosed with CRPS. Raegan, who is 14, has been fighting other incurable diseases her whole life, gastroparesis, mast cell activation syndrome, and Elhers Danlos syndrome. When CRPS was added to her body she spiraled downhill very quickly. Raegan is not able to walk and is now suffering with seizures on top of everything else.  She also was diagnosed with Lupus about 2 weeks later. She too was accepted in Arkansas but she didn't respond well to the treatments. We decided to come back home after finding another option for treatments for the girls here in North Carolina a few hours from our house.

This current treatment is more of a holistic approach and all the girls are showing improvements. We have been receiving care in North Carolina for the past 8 weeks. This treatment is also not covered by insurance. We have come to the point that we are completely out of funds. It's not an option for them to stop treatments as it will definitely be detrimental to their health. We know that most likely the girls will need care for the rest of their lives and being so young it's so hard to fathom. We have seen such good results with the current treatments and want to give them the best life possible despite their diagnosis. It's impossible to know when or if they will ever reach remission but as parents we want to do whatever is necessary to give them their lives back. We trust that God will continue to leading us, strengthen us, and provide a way for us. God has never left us in this valley and we know He never will. Please consider helping us care for our girls.