Cystic fibrosis treatments

Hello! My name is Emily. I'm a 23 year old female with a genetic condition known as cystic fibrosis (cf). CF has taken a huge toll on me and my life! At age 11 I started getting nasal polyp removals. I had 62 surgeries from 2011-2020. I've been for a few lung cleanouts, which they admit me into the hospital and give me a PICC line to administer antibiotics for 2 weeks. I've had many kidney issues, and have now been diagnosed with a genetic kidney disease also. My pancreas is almost completely non functioning now, forcing me to take enzymes and also get care for CFRD (cystic fibrosis related diabetes). Due to the mucus in my intestines, intestinal blockages are also extremely common for me. Which unfortunately is what this is all about right now, my intestines.

Recently in 2022, we lost our apartment and my husband Jason lost his job paving where we were living, in Massachusetts. This forced us to look elsewhere for work, and he ended up finding a good job with better pay in Virginia! So we took all we had and moved 500 miles away from home.

With this though, came health insurance. Massachusetts had masshealth, a free government health insurance, which covered all my medical expenses. Now I am not only paying 99$ a week for insurance, I still have massive copays on top of that! I'm currently on around 20 different prescription medications, and have 9 specialist doctors I need to see regularly for care from issues involving my sinuses, lungs, kidneys, liver, brain, bowels, esophagus, stomach.

Right now everything is at a standstill. I can't get any care because of bills. I don't ask for help. EVER! But I am at the point now that I'm at risk for serious complications if I don't. I have a very severe intestinal blockage. I've been fighting with it for months, completely on my own. My doctors at VCU have been ignoring me and still haven't given any suggestions of what to do. They tried 2 things that didn't work and left it up to me. So now I'm in a very bad position. I am finding a new doctor but I don't have money for the visit after paying a good amount of my VCU bills. I am in a position where if I don't get help in the next month, I could potentially die from this.

Disability has determined that I can work some type of job. I have had several jobs and none worked out. I've tried applying for disability several times, even during very difficult times, and still been denied. So unfortunately the government is absolutely no help!

If you are all inclined to, CFF.org is an extremely informative website to explain CF and many of its complications! Any money donated to this fundraiser here will go automatically to medical bills! I will need a lot for surgery and all the aftercare and whatever permanent treatment they decide on. This has been a long, painful 3 months of fighting for my life with this blockage! I am determined to win!!!

Thank you all for just reading all my story and clicking on my link! I appreciate every single one of you more than you'll ever know!! If you all could also share this with anyone possible, that would be absolutely life changing for me! Thank you