Ezzy Strong
Donation protected
I'm fighting for Ezzy to get a wheel chair accessible VAN that will be life changing for this family.
There is an "Ezzy's Strong Story" page on Facebook if you are interested in more information or would like to help further. A live fundraiser will be held in Grain Valley on Saturday November 13. Time tbd.
There are no words that will fully express how grateful this family is for your help. Thank you in advance for your generosity and kindness.
"Our Ezzy is a light to our world. He was born with Hydrocephalus, cortical visual impairments, dysautonomia and a slew of other medical challenges to face. We were originally told that IF he lived, we wouldn't have long with him. Well, our strong willed, loving, silly boy is showing us all how it's done. The only issue is that his body doesn't like to cooperate with us or him. Because of his many medical challenges he has since been diagnosed with cerebral palsy along with other muscular issues causing him to need a wheelchair. This has been no problem until recently, as when he was tiny his chair was a light weight chair more like a stroller, but as he is RAPIDLY growing, so is his wheelchair. He now has a much more sturdy wheelchair that also comes with a MUCH heavier frame. As Ezzy has also been diagnosed with XYY syndrome, which typically causes the person to grow larger, and faster than others we know we will need a long term solution to this problem. We are working to raise money to buy an accessible vehicle for him or at the very least, pay for modification on our current vehicle so that we can get his chair in and out of the vehicle safely for all involved."
https://www.facebook.com/groups/842192516380780/?ref=share
#EZZYSTRONG #FUNDRAISER #hydrocephalus #cerebralpalsy #moebiussyndrome #XYYSYNDROME
#SPREADKINDESS #spreadawareness
"Our Ezzy is a light to our world. He was born with Hydrocephalus, cortical visual impairments, dysautonomia and a slew of other medical challenges to face. We were originally told that IF he lived, we wouldn't have long with him. Well, our strong willed, loving, silly boy is showing us all how it's done. The only issue is that his body doesn't like to cooperate with us or him. Because of his many medical challenges he has since been diagnosed with cerebral palsy along with other muscular issues causing him to need a wheelchair. This has been no problem until recently, as when he was tiny his chair was a light weight chair more like a stroller, but as he is RAPIDLY growing, so is his wheelchair. He now has a much more sturdy wheelchair that also comes with a MUCH heavier frame. As Ezzy has also been diagnosed with XYY syndrome, which typically causes the person to grow larger, and faster than others we know we will need a long term solution to this problem. We are working to raise money to buy an accessible vehicle for him or at the very least, pay for modification on our current vehicle so that we can get his chair in and out of the vehicle safely for all involved."
https://www.facebook.com/groups/842192516380780/?ref=share
#EZZYSTRONG #FUNDRAISER #hydrocephalus #cerebralpalsy #moebiussyndrome #XYYSYNDROME
#SPREADKINDESS #spreadawareness
Organizer and beneficiary
Deborah Dominick
Organizer
Grain Valley, MO
Erinn Noble
Beneficiary