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Family in need after 3 wk ICU infant hospital stay

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3 weeks ago tomorrow(5/2) my 2 month old baby girl was unresponsive not breathing when we woke up. She wasn’t blue but she was limp and very pale and not breathing. I called 911 and as my wife and other children watched performed cpr at the direction of the operator until the medics arrived to take my daughter Wren to Auburn Faith hospital. She had a pulse and heart beat at the time but we didn’t know anything beyond that. That hospital isnt set up for such an event so she was transferred to Sutter children’s medical center in Sacramento an hour from home. The next 10 days were filled with dread and not knowing if she would live or if she did if she would have anything resembling quality of life(whatever that means.) we were told the baby we knew was gone and nobody can know what she would be like if she lived. We were counseled about our “choices” and what quality of life we could accept for our baby. We were told we could end it all then and there if we wanted! Wren has tubes and probes and lines in every possible orafice and vein. She was hooked to a 24:7 EEG which showed massive seizure activity happening beyond what we could see. An MRI was performed and the results were dire. She was put into a coma to rest her brain and stop the seizures. Damage to almost every center of her little brain including the stem which they felt was odd due to the positive traits she presented with on admission. We were on a roller coaster ride for days and days, every time we had any good news to share it was quickly sniffed out by our new reality. Our daughter might be gone. As a parent what does living the child mean and when are you hanging on to nothing? Needless to say everything stopped for us. Away from home kids displaced work stopped and so did cash flow. Every day and night we spent in hospital. Our three year old son joined us about a week into the ordeal and has been riding with us ever since. Wren started to improve and was given a time limit of how long they could keep her in her medical coma. If she couldn’t breathe on her own there was no hope. Well, to make it a shorter story wren started to pass every test and was downgraded to lesser acute levels of care and she has been on the regular pediatric unit now for a week eating formula and improving every day. From deaths door to about 90% the child we had before. There is no way to know if her milestones will be met, if she will be able to see (it seems like she can but we just don’t know) if she will walk or run or go to school but she is doing so well against all medical data and prediction we are very hopeful. Tomorrow is discharge day and reality is setting in. The house has no food, bills have stacked up, it is very expensive to spend all this time away from home not on vacation and with no preparation or saving beforehand.   we didn’t want to do a crowd fund but our physician suggested it during our last consult. The hospital has those mommy roo machines that rock the baby and so far it’s the only way she stays calm and gets any real sleep. Those things alone are $400 plus. I am not comfortable posting this and asking for help but I decided to put the ego away and give it a try with no expectations or any idea of how much money to ask for. If you have ever been touched by something like this prayers carried us through. We fully plan on enrolling in the parent support volunteer program here where our experience may help some other people in our shoes. Please like share donate ...whatever you can to help. Again this isn’t for luxuries it is to help us get back to even if possible. I thank you in advance for any consideration or even any simple prayer in lieu of money. It’s all good. Thank you for reading my baby’s story.
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Donations 

  • Jamie Dodge
    • $100
    • 5 yrs
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Organizer

John Flynn
Organizer
Auburn, CA

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