Felicia's Bone Marrow Transplant (PNH)

John Preston is organizing this fundraiser.

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I’ve learned a difficult lesson, there is a gap between living and surviving, and my disease is the bottomless pit that has swallowed my life. I used to spend mornings lacing up hiking boots, looking forward to the crunch of gravel and the smell of sage in the desert. Now I spend mornings putting on a mask and the rattle of pill bottles. I used to email teachers, study textbooks and wait for my grades to be posted. Now I email doctors, study treatment options and wait for blood tests to be posted. I used to look forward to being a mother, growing something that was part of me and the man I love. Now I have a mechanical port that lives under my skin. I used to look forward to visiting my friends and family, laughing over dinners we would spend hours preparing. Now I have to wait for blood tests to see if I can hug my parents and sisters. I am here to ask your help to get my life back.

I have a chance to return to normal, I have a chance to get my body back, a chance to be a mother and wife, to close that gap and get back to living. The disease that has taken so much from me is called Paroxysmal Nocturnal Hemoglobinuria or P.N.H. and it is incredibly rare, one in 2 million people rare. Over the past few years both established treatments have failed to cure my condition. My only remaining option is a bone marrow transplant. Which involves flooding my body with poison and killing my flawed bone marrow and with that my entire immune system Then inserting healthy bone marrow and regrowing my immune system, without the taint of P.N.H. As part of the procedure I will spend 6 or more weeks in the hospital, then 3 months or more quarantined at home. While I have had to isolate depending on my weekly test results for over a year, this is within my power. I can do this, I can be healthy again. I will live.

My husband is strong, both physically and emotionally. He loves me for me and together we have been able to meet each challenge.

Join us here for updates on my health journey.

All donations will go towards covering the procedure, and living costs as I recover.