Fifi’s medical management

Chantelle Evans is organizing this fundraiser.

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Hello, my name is Althea, but my friends call me Fifi. I'm 8 years old and some of my Favourite hobbies include playing ice hockey for the Peterborough phantoms u10s team, unicorns, collecting Disney plushies, and all things sensory like fidgets and slime.

In July 2023, I developed a jerking motion in my head literally overnight, and it quickly got worse in a matter of weeks. For the past 9 months, I have been dealing with motor and vocal tics massively triggered by my surroundings and emotions to name only a few. Bright lights, loud noises and exhaustion are my biggest triggers but are unavoidable in day to day life. I have also struggled with early onset complex asthma diagnosed at just 1 years old (although this has greatly improved with the physical demand of playing ice hockey for the past 3 years).

(Althea age 2.5)

In December 2023, I had my first attack, which was a terrifying experience for me and my family. The attacks have become more frequent and severe, causing harm and stress to myself. A medical-grade helmet is needed to protect my head during these attacks, but the cost is beyond what my family can afford.

In January 2024, we sought help from a private paediatric neurology specialist after no assistance was offered in the Interim of being on the waiting list. We where very concerned around the tic attacks which by this point became daily. The specialist who diagnosed me with a chronic tic disorder and suspected ADHD, ASD and Sensory processing disorder. I was prescribed Clonidine to help manage my symptoms, but the monthly cost is a financial burden for my family.

(Fifi is 1 of 4 siblings all neurodiverse)

My passion is playing ice hockey, and it's physically challenging for me. The tics are triggered by tiredness (amongst many things) making it difficult to continue playing without proper medical support. We are seeking support to fund my monthly prescription and consultation fees for up to 8 months to ensure my well-being and future.