Fight Like Gigi ❣️

Hi everyone. Just here to update you on the fundraiser. 

This journey is a race to the finish line, BUT it’s not a sprint. This is a marathon. The goal is to finish strong whether that be the cure, but most importantly a full and fulfilled life by Jayna’s standards. Things change frequently. Jayna is still in diapers and drinks from bottle like sippy cups. Things come up even more often than said change. We have a ton of medical equipment. Tons of appointments. Caring for Jayna is expensive, so if God places it on your heart, please continue to pray first and donate if you can.

My name is Jameshia, the mom on the sweetest three year old you would ever meet.

I first knew my daughter would be special when she came to me in a dream while I was pregnant. I saw my baby’s face as clear as day like I did the day she was born. I wasn’t sure about what I would name her, but when she survived our rough birthing experience I knew then how much she and I were favored. I named her Jayna Giselle which means God has been gracious and a pledge- as my first born dedicated to my Lord- respectively. Her nickname is Gigi which means God’s Earth worker. Every part of her name is purposeful and it shows every single day.

Jayna was born (03/02/2019) with an undetectable heart beat and no breath in her body.

She was given oxygen while time stood still for me. It was exactly as I saw in my dream. Since then, we’ve spent a lot of her life visiting with doctors who had no answers for my questions. All they could tell me is, “Every child moves at their own pace.” That wasn’t good enough for me. I grew tired of the unknown and feeling unheard, so I urged to be referred to a doctor who could help. We were sent to a neurologist at Childrens of Alabama. It took about 8 months to get an answer. Once again, it was something God has shown to me in an desperate seek for answers on Google late one night.

In July of 2020, Jayna Giselle (Gigi) was diagnosed with a rare congenital disorder of glycosylation known as PMM2.

Gigi is about 1 of 8-900 in the entire world. About 20% of patients with PMM2 die within one year from birth. Others live longer, but most are wheelchair bound through end of life. She is just about two months shy of four years; still, she can not walk, talk, or even eat like the average child her age. She attends a school for  special needs children like herself just 2 days per week for, four hours. I work full time as I am the sole provider of everything from her livelihood to childcare, and we spend a lot of time on the road for therapies, consultations, medical equipment, and various doctors appointments.

I am raising this money for Jayna’s future travels to participate in a clinical trial that could help her with her speech.

My hope is that she may walk, talk, run and lead a full life with all accessible resources. It would mean so much to me if you would contribute to her journey to a supernatural healing for my sweet girl. Thank you for taking the time to read about my angel, my favorite girl and we appreciate you all who donate, think of her, and prays for her.

-All my love,

Jameshia