Lilah Butterfly’s EB Fund

My name is Kelsey Townsend. Lilah has a life threatening incurable disease known as recessive dystrophic epidermolysis bullosa. Her skin is missing the essential genetically made protein, or anchor, that keeps it attached to her body. This condition also affects mucous membranes such as mouth, throat, nose, eyes, and internal organs. This disease requires constant bandage changes, expensive medical equipment, strong narcotic pain medications, specialized clothing, blankets, Therapeutic toys, and materials.

Lilah is fed and medicated via g-tube a tube inserted through the belly in to the stomach.

I am now a single mother of three children, unable to make enough to cover current expenses.  I have a huge desire to provide the best treatment for Lilah. All donations go soley to things necessary for her health, safety, and development!(This includes rental assistance, groceries, and out of pocket prescription medications)Thank you so much from my little family to yours!