Help 16yr old battle Duchenne Muscular Dystrophy

Kevonté is my 16 year old cousin who was diagnosed with Duchenne Muscular Dystrophy over a year ago in the summer of 2019. He is the first Duchenne Muscular Dystrophy (DMD) case to ever be diagnosed in our little island of Antigua. Because of this, there is a lack of knowledge in the medical field to support him and his needs. His heart is now swollen and we are appealing desperately for help to support him and get him the medical care he needs to live as we fear his life expectancy will continue to diminish without care. He is living in Antigua and so we are appealing for care/ support from experts abroad.

Duchenne's is a genetic disease that affects 1 out of 5,000 male births in which there is a degeneration of the muscle tissue and a loss of muscle mass  in the legs and pelvis. This affects Kevonté’s ability to walk, run, and do any normal everyday activities as your average teenage boy. By age 10, people with DMD may need assistance in walking such as leg braces which he did not have as we weren’t aware of this condition, and by age 12, most patients become wheelchair dependent. The average life expectancy for those with DMD is 25 years. 

He is a very strong willed and happy teenager and wants to be independent most times, however due to his leg muscles not being able to function the way that is needed when simply walking, he often falls making small trips from one corner of a room to the next. He expresses pain in his legs due to his muscles tightening from doing something as simple as standing/ walking out of the simple act of wanting to play with his other siblings. Kevonté has not been receiving treatment since his diagnosis, again, due to the lack of knowledge on his condition in Antigua. As a family, the most we can/could do is provide a little ease by putting our money together to get him a wheelchair. And as you imagine, this has now become increasingly difficult in our current climate. 

Any donations that could help enhance Kevonte’s life would be greatly appreciated. We would really love for him to see someone who specialises in cases like his and also be able to pay to maintain his care. 
All donations we receive will be  going directly to his treatment/consultations etc  and would mean the world to us and especially Kevonté. With  how quickly the disease is progressing and limiting his body, and now affecting his heart, we hope and pray to get him treated and attended to as soon as possible. 

I have made a facebook page for those who would want to keep updated on this journey to save Kevontés life. It is called Kevontés page- Duchenne Muscular Dystrophy.

Thank you for any help and please keep us in your prayers