Help Fight CRMO -A 1 in a million bone disease
Donation protected
Since Alyea was diagnosed with CRMO (a very rare form of bone disease) -she's learned to overcome its daily symptoms of facial pain, swelling and overall body aches...
After pain & swelling in her mandible bone for more then 8 months & trying to find a diagnosis, she visited over 7 different doctors before coming across a fantastic pediatric specialists & oral surgeon-- 9 months later, we have found a diagnose. Unfortunately medical bills are never ending, w/ multiple doctor visits over the past
17 months, along w/ hospital infusions, hospital stays for bone biopsy, & additional medications.
Soon a costly line of injections and oral medication may be prescribed that will help maintain the disease and give her the consistent comfort needed to continue living a pain free -active childhood.
While she continues training her favorite sport of Figure skating and has been a trooper through every blood draw, medication, infusion, CT, MRI scans or surgery, she looks forward to the day when the disease is at rest.
We hope to bring awareness & a cure to this rare chronic disease some day.
Thank you all for your prayers and generosity! We greatly appreciate your support ❤️
(Gina Z.)



After pain & swelling in her mandible bone for more then 8 months & trying to find a diagnosis, she visited over 7 different doctors before coming across a fantastic pediatric specialists & oral surgeon-- 9 months later, we have found a diagnose. Unfortunately medical bills are never ending, w/ multiple doctor visits over the past
17 months, along w/ hospital infusions, hospital stays for bone biopsy, & additional medications.
Soon a costly line of injections and oral medication may be prescribed that will help maintain the disease and give her the consistent comfort needed to continue living a pain free -active childhood.
While she continues training her favorite sport of Figure skating and has been a trooper through every blood draw, medication, infusion, CT, MRI scans or surgery, she looks forward to the day when the disease is at rest.
We hope to bring awareness & a cure to this rare chronic disease some day.
Thank you all for your prayers and generosity! We greatly appreciate your support ❤️
(Gina Z.)
Organizer
Shing Z
Organizer
Charter Township of Clinton, MI