
Help find a cure for NKH
Donation protected
Imagine having A baby and discovering they were very sick . Next imagine finding out they had a rare terminal metabolic disease called non Ketotic hyperglycinemia or NKH. NKH affects less then 500 children worldwide. There Are very few treatment options currently available. Because it is so rare and affects so few pharmaceutical companies are not interested in funding research for a cure. Hard to understand but it's true . Most of our funding for NKH research is raised by families and friends who know or have someone affected by NKH. We have been lucky enough to find a amazing several doctors who are now working on NKH research. One if out of the University of Colorado and One is Notre Dame. Funds raised will be divided between these two doctors and Universities. We need funds to keep that research going. Please visit www.nkhcrusaders.com to Learn more , please donate if you can.
ALONE WE ARE RARE, TOGETHER WE ARE STRONG.
Help us find a cure!
ALONE WE ARE RARE, TOGETHER WE ARE STRONG.
Help us find a cure!
Organizer
Kristin Zabriskie Archibald
Organizer
Weymouth, MA