For a WC accessible van and equipment for cole

Hi my name is chloe and I'm fundraising for help with the deposit for my son cole to get a mobility car and adaptions need to let him finally have a life, get to all important hospital appointments and to make him see that life can be more than house bound and memories are plenty to make once we get him wheels. Abit of history on Cole and what happened first. Cole was an average everyday boy, attending high-school, very very smart with reguards to lessons. great group of friends, very sociable and kind. Gaming was his world and he loved basket ball. His only medical issues were asthma and allergies. In December 2020 coles asthma had been playing up badly, we had took countless trips to doctors and hospital to control this but unfortunately it just wasn't working as we hoped. On that dreadful day Cole was growing more unwell very quickly and when all the steps of his asthma care plan had been followed I told him we had to go to hospital, something he didn't want due to worries and anxiety with the countless hospital trips and stays he already endured from a young age. So I rang ambulance and they were straight out within 10 minutes. At this stage Cole was physically to out of breath to walk down the stairs for the crew and was slid down with their help. After doing a few checks they seemed incredibly worried and told Cole he needed hospital and would be blue lighted to hospital. Once in ambulance he was given adrenaline (something that he hasn't had before on his many trips) this had me thinking something wasn't right and he looked so scared. 6minutes later we got to hospital and Cole was run to resuscitation. There was already 10 people waiting for him, after trying to get lines in him, but unfortunately Cole started to fight anyone trying to help him, he tore at his neck to help himself breath, defected on the floor in panic, and with the adrenaline on board his blood was squirting round the room and on people in the struggle. I kept being told he can't help how he is reacting as he was in hypoxic state, as I was horrified as this was not my sons behaviour. When they said to bring in the bed to strap him down I said i had to leave as my heart broke. I was brought to a quiet bed area to sit. Minutes later a nurse in charge arrived telling me Cole had suffered major cardiac arrest and wasn't breathing and they were working on him to try save him. My world fell utterly apart. I will never forget how lonely I felt getting this news and how I petrified I was I would lose him. I was kept with a staff member at all times. Doctors had all but given up as coles Airways were rock hard with the asthma attack and getting him intubated wad proving difficult, after one last try they Finally after 15minutes got him on a ventilator. Unfortunately Cole had been fully starved of oxygen and the damage was already done but to what extent we wouldn't know as Cole was critical. He was put into the ICU in ulster hospital until he was stable enough to be moved to the Royal children's ICU. I was put into a bed outside another ward to stay close to Cole as I was only allowed to see him for a few minutes due to covid restrictions. A day later Cole was allowed to be moved and the Royal were waiting for him so NSTAR arrived to transport him. I followed up two hour later as they needed time to get him set up and settled. When arriving there my heart and world shattered but he was in the best place. Cole started very early on even though so heavily sedated taking seizures. This was the damage coming threw so after endless tests they called me in to talk. He has damage to the basil ganglia on his brain which is in control of movement, coordination, behaviour and speech but only time would tell how badly he got effected. He was weaned off meds a few times but Cole never coped he tool aggressive seizures and epilepsy consultants battled with scary amount of meds to control him. The battle was hard and long but we made a day were he was taking off support and breathing alone. Unfortunately Cole now has hard to control frontal lobe epilepsy, a very aggressive action based myoclonus movement disorder like advanced parkinsons and painful dystonia. He spent 2 years impatient in hospital trying to learn him how to be again and to control seizures. He spent a year in royal children's in Paul ward and then was moved to ulster Maynard where Cole caught covid, then get got phuemounia and we nearly lost him again so he has had some horrible set backs and any work physically he made on his mobility was lost when moved to ulster as they simply didnt have the resources to keep cole moving and he is now sore and stiff. coles left with the most heartbreaking physical disabilities for life. This boy I once knew is gone and now there is a child who suffers daily. He can't game anymore as his hands simply don't work. He can't feed or drink himself. Can't toilet, wash or dress himself. He has been left non-verbal due to the movement disorder being so bad in his throat muscles and he cant walk anymore and is wheel chair bound due to his feet and legs being left useless cause of movements. Cole will never have independence or be allowed to be left alone. He leads a lonely life for a teenager. Cole has had to leave his school as they can't cope with his high physical disabilities. He now attends a special school to really get some social side and the EA get him there and back. He takes over 60 tablets a day to try and give him a some what type of life, unfortunately cole still suffers daily as tablets arent doing as we hoped. He has a communication device but again can only very limited use this due to movements being a struggle. This all happened two weeks after Cole turned 14 and he had lost everything he once was. But he keeps smiling as best he can and I promised him everyday since coma to now that I would take him out to enjoy life and to show him life can be fun again and memories we can make again with his two younger sisters ( aged now 10 and 2 and a half) we have all lost the fun in life and struggle seems to be all we know. I went to enquire about a disabled van for Cole but when I was told of the deposit I knew then and there I'd never be able to get this alone and that scared me. If I can't show Cole more to life than being stuck in a bed most of the time I'm not sure how he is going to stay afloat with his mental health which is very fragile. I used all I had living in the hospital for 2 years with him and I simply can't afford this alone. Cole is now 16 and 6'2 and requires a Ford custom lifestyle that he was recommended by all involved. I was always brought up never to ask for help with stuff like this but for my son I'm willing to ask for any help I can. Everything in this journey has felt like us and Cole are being punished. Even trying to get a electric chair for Cole for the livingroom so he can be again with family for movies instead of living in his room 24/7 this money will help with that too. I thank everyone for any help in this and I will keep you all updated on any progress made with things. Cole and me are very grateful for any support. If you want to see more about Cole type into tictok Cole espie asthma and my profile you will see with more about cole