Help Freya O'Kelly(Farrell) fight for her life

Parents Mary and Bryan were looking forward to welcoming a new little bundle of joy to their family when @ 32 weeks Freya O Kelly decided to arrive early and was born healthy weighing 970garms.

At 5 days old Mary and Bryan’s world turned upside down when it was discovered Freya had developed complex heart issues. At day 6 Freya had to be resuscitated and rushed to the coombe Hospital.

Freya spent 8 weeks in the Coombe growing and fighting, she had to get to 2kgs in order to have her first operation, things improved she was taken off the ventilator and began to breathe on her own. Unfortunately there was set backs where she developed pulmonary hypertension and was transferred to Crumlin hospital.

Fighting as she does best she reached 2kg but no longer required her first operation. A new target was set to get to 4.5kg in order to have open heart surgery. Over the course of the next few weeks Freya became strong enough that Mary + Bryan were able to bring Freya home to their family home to finally meet her two brothers and sister.

Freya is now 7 months old having only been able to spend 1 ½ months of her young life at home. She is currently in Crumlin Hospital and has been there for the last two months fighting chronic lung disease, All during this time doctors are trying to get Freya stable in order for her to have the open heart surgery.

On the 14th May Mary + Bryan’s world was turned upside down once again when a scan showed that Freya had developed pulmonary vein stenosis a horrible condition that has a lot of uncertainty around. Freya was taken for a cardiac catheterisation procedure to balloon one vein and put on a chemotherapy drug to slow down or hopefully stop the progression. There is no cure for this but the hope is that it can be stopped from getting worse. Due to this Freya is for the moment not a candidate for open heart surgery as she is high risk.

It is now a waiting game for Mary, Bryan, Freya and her siblings to see if it will be months or years that they will have left with their baby girl and if please god they can stop the progression, they then have to wait and see if the pressures come back down in her heart so she can have her open heart surgery to fix her precious heart, either way they are facing a long road of uncertainty.

Currently Mary is fulltime in Crumlin with Freya, her maternity leave is up but cannot return to work for the foreseeable and Bryan is spending all his time between Crumlin and home with their other kids. Your donations will help cover the cost of all the traveling up and down to Dublin. It will also mean Mary and Bryan have one less worry for their family so they can concentrate on Freya and continue family life as best they can for her two brothers and sister.

If you are able to and would like to donate, any amount will be very much appreciated