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Fulfill Caleb's Last Needs: Funeral and Headstone

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Hello Everyone,

Caleb passed away on the way home from vacation in our car silently by falling asleep on 8/27/2021. He was 11 years old and would have been 12 on 10/7. He had a brief period in the hospital before he passed away for 8 days. We thought this was due to his asthma he had been struggling with all summer, but come to find out he had a foreign object in one of the branches of his lung that cause him to get multifocal pneumonia. They removed the object and he suddenly started to get much better, but had other symptoms the hospital explained away due to him just spending time in the hospital. Caleb had rare gene mutation of the MC4R (Melancortin 4 receptor) which played a role in his food intake, energy balance, and weight control. This causes obesity by causing hyperphagia and decreased sense of satiety, so basically Caleb never knew he was full until his stomach hurt. I mention this because Caleb's eating patterns changed that summer and did not get better once he left the hospital. He did not eat much and lost probably close to 30 pounds before he died. Since he was overweight and had been sick no one thought anything of it and due to all the medicines such as the delusions he started to see, and rapid speech, and other symptoms he started to have seemed all apart of what happened with him and that it was normal. I knew it was not normal, that he was not acting himself. The symptoms worsened as the week went on and he had a Dr appointment scheduled for when we got home. The day we left to head home, it was too late and he ended up falling asleep and passing away before we knew what happened. When we realized we no longer heard him we took action, but I think he had been long gone by then, too long.

I know it has been some time since Caleb passed away, and now have conflicting information from the hospital on how he passed, and they are not taking responsibility on their part in this. We still owe for half the funeral since his life insurance covered one half, and we also are trying to get a nice headstone in memory of him. This is what he deserves and I want to give him the very best. He was a kind, loving child and anyone who knew him would see how beautiful inside and out he was. Anyone who would like to see him in his last days you can view his youtube https://www.youtube.com/@calebandfoxy2051. You can see more videos of Caleb on my tiktok username is Anner85. I would love to set up so many things for him in memory of him, his illnesses, his genetic condition when he was alive; but right now the priority is the funeral and his headstone. If you are able to share anything we would truly appreciate it. This goes to a separate account meant for only Caleb's last needs.
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    Organizer

    Ruth Calkins-Schmidt
    Organizer
    Syracuse, NY

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