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Fundraiser for Sebastian's spinal injury care

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(Traduccion al Español al final del texto)

If you are a UK taxpayer, please contribute to our JustGiving page, arranged through the spinal injury charity Aspire, so that gift aid can be claimed.


Sebastian, our inspirational son/brother/friend suffered a horrific accident which left him tetraplegic and with multiple complex medical needs. We are raising money for Seb’s care, to enable him to return home, rebuild his new life and restart his medical studies.

Seb’s story

Before his accident, Seb was extremely active and talented - a cellist, keen rugby player and dedicated third year medical student. In December 2023, at aged 21 years, he suffered a devastating swimming accident whilst on holiday. He dived into shallow waters and hit the bottom with his head, causing permanent damage to his spinal cord at C4/5 level. After local treatment, he was medically evacuated to hospital in the UK.


The C4/C5 spinal injury and subsequent complications means that Seb is now tetraplegic – paralysed from the neck down. He faces significant challenges. He is unable to walk, has no movement in his arms or legs and is reliant on a ventilator for his breathing. The medical prognosis is that any further improvement is highly unlikely. The focus now is adapting to his new ‘normal’, and for his family and friends to learn how to manage his extraordinarily complex medical condition.

Despite the unimaginable trauma, Seb has retained incredible positivity and is determined to rebuild his life and continue his medical studies. He has much to offer and is committed to repaying the many contributions to his care from medical teams, friends, and family, by pursuing his studies and future career.


Funds needed

Unfortunately, the road ahead for Seb is long, tough and expensive. In order to move home, significant house adaptations are required to accommodate a specialist wheelchair; ventilators and other medical equipment; and the 2 permanent carers needed to manage his medical condition. To pursue his studies, he will need specialist support and assistive technology.

The local authority, NHS and other grant funds will contribute to some of the basics such as cost of carers, transportation, the ventilator and other medical equipment. But there are many items not covered which are needed if Seb is to lead a (semi-) independent life. These include:

House adaptations £170,000 (local authority maximum grant offered £60,000)

Specialist wheelchair £40,000 (NHS contribution £11,000)

Physiotherapy (FES) Bike / Physiotherapy £30,000 (required to prevent muscle wastage, bed sores and sepsis)

Assistive technology £10,000

Seb is a young, hardworking man: medical student, rugby player, loyal friend and much-loved son and brother. In a flash his life has changed unimaginably. He is determined to leave hospital and lead a successful, independent life and has much to offer. But he needs funding to facilitate this.

We also hope you will join us on this journey of recovery and discovery – we will post updates here so please revisit to stay up to date.

Please support if you can. Thank you.

Traduccion al Español:

Sebastián, nuestro inspirador hijo/hermano/amigo, sufrió un terrible accidente que lo dejó tetrapléjico y con múltiples y muy complejas necesidades médicas. Estamos recaudando dinero para la atención de Seb, para que pueda regresar a casa, reconstruir su nueva vida y reiniciar sus estudios.

Está campaña es para costear las remodelaciones mayores que nuestra casa necesita para que Seb pueda vivir en ella en compañia de sus padres, hermano y dos cuidarores que lo acompañaran 24 horas al dia. Tambien como para la adquisicion de una silla de ruedas especalizada y equipos electronicos que le permitan el uso de computadoras. Afortunadamente, recibiremos cierta ayuda del gobierno ya que se estima cubririan un 50% del gasto inicial.

La historia de Seb

Antes de su accidente, Seb era un chelista, deportista muy activo y talentoso, un entusiasta jugador de rugby y un estudiante de tercer año de medicina muy dedicado. En Diciembre de 2023, a los 21 años, sufrió un devastador accidente mientras estaba de vacaciones junto a toda su familia en Venezuela , una vacaciones soñadas después de muchos años sin vernos. Se zambulló en aguas poco profundas y golpeó el fondo con la cabeza, lo que le provocó un daño permanente en la médula espinal a la altura de C4/C5. Después de recibir tratamiento local en Valencia, Venezuela , fue evacuado médicamente a un hospital en Reino Unido gracias a un seguro viajero.

La lesión espinal C4/C5 y las complicaciones posteriores significan que Seb ahora está tetrapléjico, paralizado desde el cuello hacia abajo. Se enfrenta a desafíos importantes. Seb no tiene movimiento en brazos, manos, ni piernas y depende de un respirador para respirar. El pronóstico médico es que es muy poco probable que haya mejorías. El enfoque ahora es adaptarse a su nueva "normalidad" y que su familia y amigos aprendan a manejar su condición médica tan compleja.

A pesar del trauma inimaginable, Seb ha conservado una increíble positividad y está decidido a reconstruir su vida y continuar sus estudios. Su voz sigue fuerte, su cerebro tan brillante como siempre. Tiene mucho que ofrecer y está comprometido a retribuir las numerosas contribuciones que le han hecho los equipos médicos, los amigos y la familia, continuando con sus estudios y su futura carrera.

Cualquier colaboracion por pequeña que sea sera muy agradecida. Ayudemos este joven muchacho a vivir de la mejor manera posible con el soporte de su familia que incondicionalmente le dara amor y soporte de por vida.

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Organizer

Jelenyela Pena
Organizer
England

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