Fundraising for SDR surgery for Maya

Gan-Ochir Munkhtenger /Maya/ was born in 2014 with suspected Diplegia Cerebral Palsy. When he was three months old, we were told Maya would never walk or stand. Now 8 years later, he’s still fighting daily against spasticity (stiffness), which limits his mobility and often causes pain.

We learned about SDR, a surgical intervention which could remove spasticity in his legs and improve his overall quality of life. That surgery must be completed before he turns Nine years of age. The surgery is to be done only once in his lifetime, and hopefully, he can walk on his own one day.

Selective Dorsal Rhizotomy (SDR) is an operation used to improve spasticity (muscle stiffness) caused by abnormal communication between the brain, spinal cord, nerves and muscles in cerebral palsy. It corrects muscle spasticity by cutting the spinal cord’s nerve rootlets that send these abnormal signals to the muscles. The operation is just the start part, and the aftercare is the most vital as this will enable Maya to stand and walk unaided. Maya will also need ligament lengthening as he grows to stretch his leg muscles, requiring further physiotherapy after this operation.

Unfortunately, not every country has a hospital that performs SDR surgery. But we have identified a few hospitals in America, England, India and Turkey. We are working closely with them to see what we need to do to allow my son to have a better life, walk to school, go to college, and explore the fantastic world as any parent would want their child.

If you can spare anything at all, every little bit will help. We would be extremely grateful for every donation which will pay for the Surgery, Travel & ongoing rehabilitation after the procedure.

CRC in Dublin have already offered to help with the rehabilitation, and so far, people have started making donations, and we are very grateful. Thank you for your generosity, and may God bless you all.

Very kind regards,

Nasanbuyan Tseveen /Mom of Maya/