Kru’s FFU Journey!

Hi everyone!!

As many know, our son, Kru, was born with an extremely rare congenital bone formation, FFU (femur fibula ulnar syndrome). The journey so far, although amazing to watch, has also had a lot of ‘unknowns, and I’m sure will have a few more along the way. Although, right now, we’re focusing on the current task at hand, which is getting him his prosthetic, getting him into physical therapy, and so on!

Steven & myself are not typically ones’ to ask for much help, but if it’s in the best interest of our child, sign us up!! I don’t think anyone plans on having a medically complex child, or the expenses that may come along with it, we’re just so grateful for the community of people that we have. We have never felt anything less than supported, and I know that will mean the world to Kru someday, just like it does for us!

We appreciate all of you, and look forward to using our platform to help guide other kids & families with similar scenarios!