Adelaide's -Warrior Princess- Cancer Battle!!

Hello,

Friends, Family, Prayer Warriors and Well Wishers

Its with a very heavy heart that I am writing this today.

Our sweet little Warrior Princess Adelaide has relapsed. This will be her 4th relapse; she will be 6 in March.

For those new to our battle this is Adelaide’s Story

In 2019, at 20 months old, Adelaide started her brave and heartbreaking journey of fighting stage 4 Neuroblastoma, a rare and aggressive pediatric cancer. She is the strongest little fighter we have ever known. Throughout this nasty fight, her parents, Kati, and Ian, have been on an emotional rollercoaster ride of a lifetime.

Adelaide had her first relapse in December 2020. As most know, a relapse is the most horrifying and scary diagnosis a parent and family can receive. Adelaide had to go through treatment for the 2nd time at 3 years old.

Adelaide was a candidate for a very hopeful clinical trial vaccine treatment at Memorial Sloan Kettering and began this journey of traveling to NYC every 3 months for treatment for the next 5 years in 2020. She went in for her scans, per the program protocol and all was clear.

25 days after her clear scans, Adelaide began complaining of leg pain, and severely limped within a few days. After a trip to get some X-rays, the horrible news was confirmed, they found a spot on her leg.

On 9/19/2022, we found out that Adelaide‘s cancer had come back. They quickly removed the tumor from her leg and filled the spot in with cement.

However, a relapse #3 was confirmed. Adelaide had her port put back in 9/26/22 after only a few short months of getting it removed.

She began another round of chemo on 10/2022.

This Chemo treatment went well, she recovered beautifully and started living like a spunky little kid. Swimming, dancing, (no more leg pain)! Playing with her baby brother, doing all the fun kid stuff!

Adelaide started Kindergarten in September 2023! A very exciting time, her hair had grown out, she was making friends and loved learning!

Unfortunately, that only lasted about 3 weeks.

Around November 1st she started complaining about leg pain and from all the previous experience, we know it’s not a good thing.

The cancer is back. The treatments are not working.

Adelaide currently is unable to put any weight on her leg, the tumor has eroded most of the bone and she is at a very high risk for fracture. She will be having surgery next week to clear out the tumor, fill it with cement and wrap metal plates around the bone. After surgery she will be heading to Houston Texas, Children's Hospital.

Adelaide is now part of a trial study; she will participate in a Phase 1 clinical trial involving CAR-T/CAR-K Cells. So far only 15 children have been used in this study, it is in the very early stages, but we have no other option but to fight.

Adelaide will be given a dose strength that has not yet been administered safely to a patient. The risks of this trial are great, and this was a heavy decision to make. All other clinical trials consist of large quantities of chemo, which would lead to a quality of life that would do more harm than good and have very little promise of remission for Adelaide.

She has received so much chemo, including two back-to-back bone marrow transplants, and even then relapsed very quickly after.

This is our Hail Mary, to buy her some time away from the treatments, and hopefully a long span of remission.

Why GoFundMe?

This clinical trial takes place in Houston Texas Children's. It is 5+ weeks long. Kati will be bringing Christian (20 months) on this trip so Ian can stay home and work.

Insurance does not cover much, $100 night per-diem and the flight of Kati. Kati will need to have a caretaker (rotating family) for Christian while she is at the hospital daily with Adelaide. Car rental is not covered or food. Around the 3-week mark, Ian will come and join Kati and Adelaide when she goes in for the toughest part of the treatment, his flight is not covered. This trip will be expensive, but it is our only hope.

Flight Miles, Airbnb, Rental Car…. Any help is beyond appreciated! If Venmo or Zelle or a paper check is your thing, no problem. Please DM me - Lindsay Vico and I'll get get you the info.

With Love and Gratitude

The Vico & Young Family