Baby Nayeli needs your support
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Hi my name is Nayeli Evannie Orta.
On September 26th 2015 at 6:00 a.m. my mother’s water bag broke; I was not due until October 5, 2015. That morning my father rushed her to the hospital, naturally they were a little nervous about my anticipated arrival but they waited patiently, full of excitement. After 13 hours of intense labor they were expecting a normal delivery, unfortunately it turned out to be an emergency C-section. I barely got to see my mother and father for a mere 10 seconds of my life before they rushed me off to the NICU (Neonatal Intensive Care Unit) in the hospital. The very next day the doctors transferred me to the NICU at Children's Hospital of Dallas where I have been ever since. Through it all my parents have been at my bedside, learning along side of the doctors and nurses about my condition. Initially when I came to the hospital the doctors thought I was going to need a surgery on my intestines, my white cell count was very high due to a severe infection, my respiratory was poor and my blood was producing more acid than needed for my little body. After further tests and careful examinations it was determined that surgery was not necessary at this time and antibiotics would treat my infection and blood condition. However, as I began to get better my respiratory wasn't improving of which the doctors called this tachypnea, which means abnormal rapid breathing. The problem with this type of disorder is it affects the way I am able to eat. Because of this misfortune I have become uncoordinated when it comes to eating, breathing and swallowing. Breathing is my primary concern which I am able to do, but eating and swallowing becomes too much for me to handle all at the same time. Doing all three causes my heart rate and respiratory elevate at high rhythms to where I fall asleep immediately. This has caused my body the inability to gain weight because of lack of nutrients. In order for me to sustain the calories and nutrition I need to grow, I've had to be fed through a tube in my nose. The doctors and surgeons decided long term care would be having a g-tube (gastronomy tube) surgically placed that goes directly to my stomach. Eventually one day I'll be able to go home but for now I'm still in the hospital. Again because my parents have been here with me at the hospital every step of the way this has caused deep emotional pain and a heavy financial strain on my whole family. Both my parents have been by my side faithfully while learning the importance of how to properly take care of my disability. Even once I get out of the hospital I will still need at least one of my parents to take care of me while one works but I’m afraid it will take an additional person to help. What I am asking for is just a little financial help for me and my family since my daddy is the only one able to work during this time. My mommy is attending to my special needs. Please feel free to give whatever you are led in your heart for even pennies add up and at the moment even the littlest amount is extremely helpful. Thank you so much from the bottom of my heart Nayeli Evannie Orta and Terronez family. God bless you, and please continue to pray for me and my family.
A little tidbit about my name:
“The origin of my first name is Native American from the Zopatec language meaning "love you". Evannie is of Greek origin and it means "peaceful". My mom “Delia Terronez” and dad “Tony Orta” put in a lot of thought into naming me as a reflection of what type of relationship they have together and how they felt about me”.
On September 26th 2015 at 6:00 a.m. my mother’s water bag broke; I was not due until October 5, 2015. That morning my father rushed her to the hospital, naturally they were a little nervous about my anticipated arrival but they waited patiently, full of excitement. After 13 hours of intense labor they were expecting a normal delivery, unfortunately it turned out to be an emergency C-section. I barely got to see my mother and father for a mere 10 seconds of my life before they rushed me off to the NICU (Neonatal Intensive Care Unit) in the hospital. The very next day the doctors transferred me to the NICU at Children's Hospital of Dallas where I have been ever since. Through it all my parents have been at my bedside, learning along side of the doctors and nurses about my condition. Initially when I came to the hospital the doctors thought I was going to need a surgery on my intestines, my white cell count was very high due to a severe infection, my respiratory was poor and my blood was producing more acid than needed for my little body. After further tests and careful examinations it was determined that surgery was not necessary at this time and antibiotics would treat my infection and blood condition. However, as I began to get better my respiratory wasn't improving of which the doctors called this tachypnea, which means abnormal rapid breathing. The problem with this type of disorder is it affects the way I am able to eat. Because of this misfortune I have become uncoordinated when it comes to eating, breathing and swallowing. Breathing is my primary concern which I am able to do, but eating and swallowing becomes too much for me to handle all at the same time. Doing all three causes my heart rate and respiratory elevate at high rhythms to where I fall asleep immediately. This has caused my body the inability to gain weight because of lack of nutrients. In order for me to sustain the calories and nutrition I need to grow, I've had to be fed through a tube in my nose. The doctors and surgeons decided long term care would be having a g-tube (gastronomy tube) surgically placed that goes directly to my stomach. Eventually one day I'll be able to go home but for now I'm still in the hospital. Again because my parents have been here with me at the hospital every step of the way this has caused deep emotional pain and a heavy financial strain on my whole family. Both my parents have been by my side faithfully while learning the importance of how to properly take care of my disability. Even once I get out of the hospital I will still need at least one of my parents to take care of me while one works but I’m afraid it will take an additional person to help. What I am asking for is just a little financial help for me and my family since my daddy is the only one able to work during this time. My mommy is attending to my special needs. Please feel free to give whatever you are led in your heart for even pennies add up and at the moment even the littlest amount is extremely helpful. Thank you so much from the bottom of my heart Nayeli Evannie Orta and Terronez family. God bless you, and please continue to pray for me and my family.
A little tidbit about my name:
“The origin of my first name is Native American from the Zopatec language meaning "love you". Evannie is of Greek origin and it means "peaceful". My mom “Delia Terronez” and dad “Tony Orta” put in a lot of thought into naming me as a reflection of what type of relationship they have together and how they felt about me”.
Organizer
Irene Terronez
Organizer
Felton, CA