Gaven Quirarte

On June 7th, 2020 the family received the final lab report confirming that their then 5 year old Gaven was suffering from a rare and 100% fatal genetic muscle wasting condition.

Duchenne Muscular Dystrophy (“DMD”), a condition primarily affecting boys, is a result of a defect in the Dystrophyn gene, which is responsible for creating and maintaining every muscle in the body. Gaven is now 8 years old, takes daily steroids, goes to therapy every week and he sees 6+ specialists every couple of months.

Watching your child fall behind and notice but struggle to keep up is heartbreaking.

You learn quickly that strength grows in the moments when you think you can’t go on, but you keep going anyway. It’s the little things that matter the most, we promise.

He’s still the same person he was 2 years ago; why would anything change because of a disease?

He loves Goats, Motorcycles, Legos and the color Blue!

Duchenne does NOT defy him nor us; it hasn't changed the way we live our lives, we just do things a little differently, and maybe a little slower.

A strong person isn’t the one who doesn’t cry, a strong person is the one who cries for a moment then gets up and fights harder.

“…Stand firm in the faith, be courageous, be strong”

(1 Corinthians 16:13)

Friends and colleagues are raising funds for the Quirarte family to help with ongoing and increasing medical and travel expenses.

Thank you in advance for your support.