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Gavin’s Medical Adventure

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Gavin was born with a Lymphatic Malformation (LM) of the neck/chin area. This diagnosis effects his lips, tongue, and around his trachea as well as his cheeks. (LM - big and small fluid filled cysts are what make up the Malformation)

He was born via c-section and by EXIT procedure, where he was intubated halfway through the surgery. From February 1st to September 13th, Gavin spent his life in the NICU and Nicklaus Childrens Hospital in Miami, Florida. At 5 days old he began his first, of many, sclerotherapy treatments. (Sclerotherapy - The doctor punctures the cyst, aspirates it, injects medicine, and allows it to drain). On April 26th, Gavin underwent a seven hour intricate debulking surgery. Recovering from that was a battle but he did it! He’s our little warrior! He encountered many obstacles and multiple (12) trips to the OR before finally being discharged home on September 13th! 

Since being home we’ve accrued quite the pile of bills and not to mention co-pay after co-pay for each of the Specalists he needs to follow up with, along with gas and tolls back and fourth to doctor appointments and days off from work we’ve had to take since bringing him home. 

This fund will will be a huge weight off of our back. We could not thank you all enough for all of the love and support you all have continued to provide! We really cannot be more thankful.
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Donations 

  • Anonymous
    • $100
    • 4 yrs
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Organizer

Victoria Silvestri
Organizer
Jacksonville, FL

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