Gemma's 2nd Birthday-Contributions Toward a Cure

we call gemma our wildflower baby because she came into our lives unexpectedly. this girl has brought such a depth of beauty and transformation into our lives that we never saw coming.

she has taught us to slow down and really take in the wonders of nature. she has opened our hearts to be more compassionate to ourselves and others. she has taught us that even though life can feel heartbreakingly challenging, you can still carry on with a smile that lights up a room.

while this journey so far has felt painful and isolating at times, it does feel empowering to now have an answer. we know we are blessed to receive a diagnosis of rett syndrome in a time where there are many resources for support and lots of research for treatments and a cure. we are all still learning to adapt to this new life. it is messy and frustrating at times, but gemma is so incredibly easy to love and we are all committed to helping her live a beautiful life, no matter what challenges come our way.  she is blessed with an amazing brother and sister that adore her, and they are blessed with all the gifts gemma is teaching them about life. 

we dream of a day that gemma will be able to speak again. we are grateful and at the same time crushed when we look back on videos of her saying the few words she had learned to say before she lost them. it would be the greatest gift to see her have control of her hands again and to hear her voice being used as it was meant to. we have hope for a cure that gemma will one day be able to live a life where she is free to be independent.

we would love to celebrate gemma's birthday every year by donating to a cause that focuses on supporting families impacted by rett syndrome, treatments and a cure. this year we decided to raise money for rett syndrome research trust. their focus is a cure and we can't think of a better gift than that. 

if you would like to make a donation, any amount will have an impact in gemma's life, as well as many other girls living with rett syndrome. thank you so much.

michael & daniela 



*More information about Rett Syndrome Research Trust: Without research breakthroughs, Rett Syndrome and MECP2 spectrum disorders will continue to devastate victims and their families. RSRT believes breathtaking changes may be years - not decades - away, and we thank you for your donation to speed this work forward. RSRT is a 501c non-profit. All donations are fully deductible.

https://reverserett.org/about-rett/